For 23 years, the Carrie Brazer Center for Autism in Miami has served students on the autism spectrum and others with neurodiverse conditions. During that time, Brazer, a Florida-certified special education teacher with a master’s degree in special education, noticed that families from the Florida Keys were driving as much as three hours to come to the area for therapies and other services.
To better serve those families, Brazer opened a small office in Tavernier, an unincorporated area in Key Largo with a population of 2,530. When a charter school campus across the street became available, Brazer seized the opportunity to open the school’s second campus on the half-acre lot.
The new campus opened last year with six large classrooms in a 5,000-square-foot building. The school has a large indoor play area with lots of swings. The weather usually is pleasant enough for the students to eat lunch outdoors.
“It’s just gorgeous,” Brazer said. “It’s very beachy and homey and airy and spacious.”
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BY ROGER MOONEY
SARASOTA – Sophia Slaughter, who is 15, recently learned to jump rope.
Maybe that is not a big deal to someone who was skipping Double Dutch at 5, but it is to Sophia, who is on the autism spectrum and has dyspraxia. Known as developmental co-ordination disorder, dyspraxia hinders her coordination. Some activities that neurotypical teenagers consider routine are nearly impossible for her.
While working with trainer Dani Williams at NXT Generation Wellness in Sarasota for the past two years, Sophia gradually gained command of her muscles and their movements. She can hold a yoga pose and coordinate her footwork to move through a series of squares taped on the floor at NXT Generation.
And she can complete in proper order the mini skills that allow her to jump rope.
“It’s life-changing,” said Sophia’s mom, Jennifer Slaughter.
Sophia, who lives in Sarasota and is home schooled, receives the Family Empowerment Scholarship for students with unique abilities (formerly the Gardiner Scholarship). It is managed by Step Up For Students. Sophia uses her education savings account that comes with the scholarship to pay for the sessions at NXT Generation, as well as for yoga classes and ballroom dancing.
These activities added health and fitness to Sophia’s life, helped her become more socially interactive, and gain a circle of friends.
“That’s the ultimate goal,” Williams said. “Elevate and enhance their current life, or what they view as their current life, and open doors and continue on this path.”
In early August, 20-year-old Riley Joyce for the first time in his life rode a two-wheel bicycle without any assistance. His mom, Judi, who watched from the driveway of their Sarasota-home cried.
“It was the best thing ever to see,” Judi said.
Like Sophia, Riley is on the autism spectrum. He lives in Sarasota and is home schooled. Riley also receives the Family Empowerment Scholarship (formerly Gardiner) and uses his education savings account for yoga, ballroom dancing and sessions with Williams.
Riley was introduced to Williams three years ago during her Saturday group classes, which are sponsored by Face Autism. For the past two years, Riley has taken weekly one-on-one classes with Williams.
Started by Colleen Buccieri, whose godson Jordan Soriano is on the spectrum, Face Autism is a nonprofit that organizes autism-appropriate activities such as bowling, horseback riding, and golf. It also sponsors a ballroom dancing class at Dynasty Dance Club in Sarasota.
Judi enrolled Riley in the fitness class, hoping he would get healthier and make friends. Check and check.
Riley has lost 33 pounds since he began working with Williams. At first, he could barely manage five minutes on the treadmill. Now he can walk and run for 30 minutes, increasing the pace as he goes along.
“His endurance has gone off the charts,” Judi said.
As for socializing, Riley chats with everyone he encounters, making friends wherever he goes.
“He doesn’t stop talking, which is great,” Judi said. “I love it.”
In July, Riley spent a week in the Adirondack Mountains of New York with a small group of friends who are on the spectrum. They hiked, went fly fishing, ziplining, and kayaking.
The outing was the idea of Williams’ boyfriend, Chase Pettey, who runs Adventure For All, a nonprofit that creates interactive adventures for those with intellectual and/or developmental exceptionalities.
Riley tried to ride a two-wheel bike during the trip and came close. He finally conquered that feat not long after returning home.
Williams helped Riley master the bicycle (which Riley purchased with his education saving account) with a series of exercises over a six-month period that improved his balance and stability.
“The confidence in Riley has just skyrocketed,” Williams said. “He’s much more willing to try new things, so that’s been a wonderful thing to witness.”
As Jordan’s godmother, Colleen was keenly aware of how children on the spectrum grow up without friends. They aren’t invited to birthday parties or asked to go to the movies. She created Face Autism in 2009 to change that.
“I just look for different opportunities for kids to be involved in, things that typical kids would be involved in,” she said. “And I’m a big proponent of getting them off the video games and the computers. A lot of the kids don’t have fitness in their life. I think it’s very important – have a healthy heart, a strong body. Most of them don’t have upper body strength.”
Jordan, 21, lacked upper body strength when he began training with Williams four years ago. He couldn’t jump rope. He could ride a two-wheel bike, but he couldn’t peddle with much power.
A recipient of the Family Empowerment (formerly Gardiner) Scholarship, Jordan, who is homeschooled, used his education savings account to pay for his training sessions with Williams.
Jordan can jump rope. He can vertically jump 36 inches. He has learned to stand when he rides his bike so he can generate more power when he peddles. He runs 35 minutes around his home in Ellenton, Florida every other day. He is making plans to bring his bicycle to Riley’s house, so they can ride their bikes together.
Jordan, who excels at ballroom dancing, was part of the group that made the trip to the Adirondacks.
“This has given him confidence to try new things and to challenge himself,” Colleen said.
And to keep trying. During the Adirondack trip, Jordan tried to complete an obstacle course on his bike. He was unsuccessful the first time, and he was unsuccessful the second time. He didn’t quit, though, and eventually he completed the course.
“He has really shown determination,” Colleen said, “something he never had.”
That’s all part of the plan Williams has for each of her clients. Knowing no two have the same challenges, she devises individual programs for each. “Outside the box” training, she called it. Williams developed a book where they can chart their progress during workouts and encourages them to write in a journal. She teaches them about proper nutrition and the importance of staying hydrated.
Williams, who graduated from Saint Francis University (Loretto, Pennsylvania) in 2011 with a dual degree in Elementary and Special Education, works as a learning support teacher at Community Day School in Sarasota.
In 2012, Williams began Kids in Motion, which morphed into the wellness program that is now NXT Generation.
“Watching the underdogs take on things we’ve preconceived them unable to do or limited what they could actually do and see them be able to do it with the correct support and guidance is one of my greatest joys in life, hands down,” Williams said.
Her goal is to push clients with special needs through the glass ceiling society has placed above them, to show the impossible is possible.
Like jumping rope for Sophia Slaughter.
Roger Mooney, manager, communications, can be reached at firstname.lastname@example.org.
By ROGER MOONEY
Reading was a struggle for Maloni Lewis as a third grader. So was writing and math.
Her whole life was a struggle. Both parents were disabled. Her three older brothers had been to jail. They told their mom that going to school and being smart were not cool among the group they associated with.
Maloni’s mom was determined to end that cycle with her daughter.
Renée Lewis found Seven Rivers Christian School in Lecanto, Florida, near their home. With the help of the Florida Tax Credit Scholarship for lower-income families, she was able to afford the tuition at the pre-K through 12 private school. The scholarship is managed by Step Up For Students.
It took a few years, but Maloni eventually became passionate about her education. She played sports, and by her senior year of high school, her grade point average was 3.8. She left for college with the goal of becoming a nurse like her mom.
“Step Up For Students is a lifeline,” Renée said. “It allows kids and families to dream. What they thought was so far out of reach is possible.”
There are many reasons why children struggle in school. For some, the class size is too big, and they feel lost among the crowd. Others have certain special needs that cannot be fully addressed at neighborhood schools. Some kids are bullied. Some are hindered by language barriers.
And then there are those like Maloni, whose homelife is so challenging that school is not a priority.
Step Up can help.
Lower-income families can apply for the Florida Tax Credit Scholarship and the Family Empowerment Scholarship. Both scholarships are based on a family’s financial need, and both give families a choice to find a new learning environment for their child.
Parents use a single application for the scholarships and Step Up determines eligibility for either the tax-credit scholarship or the Family Empowerment Scholarship.
Parents of children with special needs can turn to the Gardiner Scholarship.
This scholarship allows parents to personalize the education of their pre-K through 12 children with certain special needs by directing money toward a combination of approved programs and providers. A list of special needs covered by the Gardiner Scholarship is found here under “eligibility requirements.”
Parents whose child is being bullied at a public school can apply for the Hope Scholarship.
In 2018, the Florida Legislature created the Hope Scholars to give relief for K-12 public school children from bullying and violence. The program provides families with financial assistance to send a child to an eligible private school, or to transport him to a public school in another district.
The Hope Scholarship, which is not based on a family’s income, provides families with financial assistance to send a child who suffered from a qualifying incident to an eligible private school, or to transport him or her to a public school in another district. The scholarship value depends on the grade level and county the family lives in.
The transportation scholarship is worth up to $750 and can be used to attend any out-of-district public school with available space.
Step Up has managed more than 1 million scholarships in the 20 years since its inception. These scholarships have been life-changers for the students and their families.
“I felt completely blessed to even have the scholarship. I don’t know what I would have done without it,” said Pamela Howard, whose son, Malik Farrell, reaped the awards of the Florida Tax Credit Scholarship.
Malik had been to four schools district schools in four years and repeated third grade after getting a report card filled with F’s.
Pamela learned of the Florida Tax Credit Scholarship and moved her son to Potter’s House Christian Academy, a pre-K through 12 private school in Jacksonville, Florida.
Weeks after enrolling, Malik’s older brother was murdered. The teachers and administrators at Potter’s House rallied around Malik. They eventually gained Malik’s trust, and because of that, Malik’s grades turned into C’s. He was a solid B student during his final two years of high school. He graduated and attended college in Tennessee.
Pamela credited Potter’s House and the Step Up scholarship for her son’s scholastic turnaround.
“To see my son just completely turn around, there aren’t even words,” she said. “That he overcame these struggles and turned out to become the young man that he is, there are no words to even explain how proud I am of him.”
Roger Mooney can be reached at rmooney@StepUpForStudents.org.
By ROGER MOONEY
At three months old, Joshua Sandoval was diagnosed with tuberous sclerosis complex, a genetic disorder where the body produces benign tumors.
The tumors are in his brain, and the medication needed to prevent daily seizures makes him fidgety. Staying focused during class can be a chore.
Teachers at prior schools told Joshua’s mother, Nilsa, that her son had behavioral issues and struggled to finish assignments. In the words of one, Joshua was “unteachable.”
Nonsense, Nilsa said. Her son can speak two languages (English and Spanish), is an avid reader and has an extensive vocabulary for a child his age. Joshua, now 13, just needed the right academic setting.
Like many parents of children with special needs and learning disabilities, Nilsa searched for a school that could meet Joshua’s needs. She found one at LIFT Educational Academy, a private one-through-12 school in Miami Lakes, Florida, not far from their home.
LIFT is a psychology, tutoring and brain fitness center that helps children develop the brain skills essential for learning.
After bouncing through six neighborhood schools since Joshua began first grade, Nilsa had finally found the right fit for her son.
There are a number of schools across Florida equipped to serve students with special needs. Many accept the Gardiner Scholarship, which allows parents to personalize the education of their children with certain unique abilities by directing money toward a participating school, a combination of approved programs and services, as well as other approved providers and resources. These include schools, therapists, specialists, curriculum, technology – even a college savings account.
This scholarship is for Florida students 3 years old through 12th grade or age 22, whichever comes first, with one of the following disabilities: Autism spectrum disorder, Muscular dystrophy, Cerebral palsy, Down syndrome, Phelan McDermid syndrome, Prader-Willi syndrome, Spina bifida, Williams syndrome, Intellectual disability (severe cognitive impairment), rare diseases as defined by the National Organization for Rare Disorders, anaphylaxis, deaf, visually impaired, dual sensory impaired, traumatic brain injured, hospital or homebound as defined by the rules of the State Board of Education and evidenced by reports from local school districts, or three, four or five year-olds who are deemed high-risk due to developmental delays.
The Gardiner Scholarship is a boon to children with certain special needs and their families. You can read here about Julian, who has cerebral palsy, hydrocephalus and a severe hearing loss that has impeded his speech, and here about Ryan, who is on the autism spectrum, and here about Valentina, who has Down syndrome.
You can read Joshua’s story here, though there is a postscript. LIFT Educational Academy went virtual during the COVID-19 pandemic. Nilsa said Joshua did not respond well to that type of learning. So, she searched for another school that would fit his needs. In short time, she found one – Aktiv Learning Academy in Miami, which is also close to their Miami Lakes home and accepts the Gardiner Scholarship.
Nilsa said the transition was smooth.
“Joshua is going to an in-person school that is simply fabulous,” Nilsa said. “He is super happy and back to learning.”
Roger Mooney can be reached at rmooney@StepUpForStudents.org.
By LISA A. DAVIS
On most Friday mornings 14-year-old Matthew Mezzei springs awake in the 5 o’clock hour, excited to start his school day. It’s the earliest he rises. His inner alarm clock alerts him to a special day in his family’s home in rural Pasco County:
“Fun Friday!” his mother, Lisa Mezzei, said. “It’s a reward at the end of a busy week.”
On this particular Friday, it’s 10 a.m., and Matthew, a bespectacled boy with a bright smile and a love for baseball, excitedly greets a visitor to his home in Zephyrhills. His house is also his classroom. The day’s schedule is laid out on the kitchen counter. It includes several educational centers such as science, math, reading and even an obstacle course for agility exercises. They use much of their home’s shared living space as a classroom, and Fun Friday consists of educational game centers rather than straight curriculum.
“Centers help me to remember,” Matthew said.
Matthew was born with Down syndrome. His education began at his neighborhood school where he had an Individualized Education Program, known as an IEP, which is essentially a guide for children with certain special needs to reach their educational goals more easily. Matthew was in a general classroom and had great support, but by first grade something changed.
“When he was 7, he started not understanding what was being asked of him on tests,” his mother recalled. “He kept saying he felt tricked, and he started withdrawing at school.”
That’s when Mezzei knew she had to do something, because her happy-go-lucky boy was now often sad. She began researching her options and realized private and charter schools were not a good fit for Matthew either. Then she discovered the Gardiner Scholarship for children with certain special needs managed by Step Up For Students. The scholarship program was new at that time. Home school seemed like the best option, and at an average of $10,000 per student annually to pay for curriculum and other approved learning tools, she added full-time teacher to her role. She decided it was best for her son to repeat first grade.
“Because of the Gardiner Scholarship, it wasn’t as daunting (to try home schooling),” she said. “The timing was so fortuitous. We had been wanting to withdraw him from the school, but we had no other options. At least the financial part wasn’t so scary.”
She used the scholarship to purchase learning aids for Matthew from places like Lakeshore Learning and Rainbow Resource. She bought science experiment kits, agility equipment, math games, chapter books, Handwriting Without Tears curriculum and more. They have used the funds for speech and occupational therapy.
Home schooling made all the difference, Mezzei said.
“Within six months, not only was his personality back, his confidence was back, and his love of learning was back,” she said.
He made great strides, and his reading comprehension increased substantially.
His occupational and speech therapists agree that Matthew, now a seventh grader has made great progress since being home-schooled.
“The Mezzei family is a therapist’s dream family,” said Kelly Partain, Matthew’s occupational therapist. “They truly take all recommendations to heart and actually implement them, which makes for excellent outcomes. Matthew continues to exceed his goals as he has an excellent attitude and works hard every day at home while being home-schooled, at therapy, or on the ball field.”
Added his speech therapist, Lindsey Leeson, who works at the same clinic as Partain, “He has a big heart and is always looking to help other kids in our clinic and tells us how much he loves and appreciates us every session. “He’s a gem.”
Like most things, his therapy sessions moved online in March, but he continues to make strides.
Matthew’s speech is often hard to understand for those who first meet him, but his glowing personality and love of learning come shining through.
“This scholarship is life-changing and allows us to educate Matthew to the fullest extent of his abilities,” Mezzei said. “Our biggest hope is for him to be happy and successful in life, and as you know, we believe unequivocally this is his best path. … Matthew is so proud of what he learns and knows.”
Lisa A. Davis can be reached at email@example.com.
By LISA A. DAVIS
Hundreds of parents, guardians, students, and teachers joined Step Up For Students online May 21 to recognize the resilient senior Class of 2020 in a time when COVID-19 has added the new term social distancing to everyday vocabulary and canceled in-person milestone events.
The recorded virtual senior celebration can be viewed online here.
In their final two months of their high school careers, students nationwide had to finish their education virtually as stay-at-home orders shuttered school buildings, on March 16 in Florida. High school seniors perhaps felt the impact most, with senior events like prom and graduation being canceled or moved to drive-by parades and virtual celebrations. Soon after typical everyday life came to a halt, Step Up staff began planning the special online event for scholarship seniors.
“High school graduation is a time to celebrate the achievement of Florida’s young men and women and the current pandemic won’t stop us from recognizing the achievements of these special students,” said Doug Tuthill, president of Step Up.
Step Up For Students, a Florida-based nonprofit scholarship funding organization, manages the Florida Tax Credit Scholarship and Family Empower Scholarship for lower-income families, the Gardiner Scholarship for children with certain special needs, the Hope Scholarship for children who are bullied in public schools and the Reading Scholarship Accounts. For the 2019-20 school year, Step Up served more than 130,000 students, including 4,445 seniors.
Tuthill, Step Up Founder and Chairman John Kirtley, and corporate donor representatives addressed the Class of 2020 during the event. The Rev. Robert Ward of Mount Moriah Missionary Baptist Church in St. Petersburg gave the invocation.
State lawmakers congratulated the class of 2020 as well.
“Even though you’ve gone through strange times and faced many obstacles,” Sen. Manny Diaz, who serves as the Senate Committee on Education chair, said to the graduating seniors, “We are here today to give you a graduation message, and that is congratulations for your hard work.”
Added Rep. Susan Valdes, “Best of luck to you and go get them, Class of 2020. I know that our future is much brighter because of you.”
Paul Shoukry, a Step Up advisory board member and CFO for Raymond James Financial, a founding donor of Step Up’s Florida Tax Credit Scholarship Program, was one of several donor representatives who spoke during the 30-minute event.
“Continue investing in yourself, as this is an important step in a long and successful journey. Congratulations,” he said.
Step Up selected two scholarship students to address their peers.
Florida Tax Credit scholar Gabriella Bueno, of Boca Christian School, credited her scholarship with helping her get the education she needed to set her on a path to become a pharmacist.
“I have much to be grateful for and I would personally like to thank Step Up, the lawmakers who believe in education choice and the donor who support it. You have all allowed me to attend what I believe has been the best school for me and has helped shaped me into the person I am today.”
Gardiner scholar Ryan Sleboda, also shared his journey with autism, not being able to speak until the age of 7, and with the help of a scholarship graduating as the class valedictorian in unprecedented times.
“Who would have imagined this is the way our senior year would end,” said, Ryan Sleboda, a Gardiner Scholarship student and valedictorian from the Pace Brantley School in Longwood, Fla. “Class of 2020, let’s go forth and resume this incredible journey!”
Kirtley, Step Up’s founder, closed out the event, saying success should not be measured by the norm.
“Be conscious of what scoreboard you are using to measure yourself. I know mine has changed. Pursue those things that can be measured for sure — those grades, that college admission, that job, that raise, that promotion. But don’t forget to measure yourself by things that have no numbers or figures,” he said and continued telling a story about a cab that drove by him in New York City advertising the Broadway musical Rent, with the words “Measure your life in love.”
“Well that sign stopped me in my tracks,” he said. “And I realized right then that I needed to worry less about measuring my life in numbers, in figures, and maybe take the advice on that sign. And it took me a few more years to understand that it’s much more important to measure the love that you give, rather than the love that you receive.
“One of the ways that I measure the love that I give is what I do everyday to empower parents to choose the best education for their kids, and knowing that you are today are graduating is all the love I need in return and knowing that you will put that education to work in these interesting times.”
Lisa A. Davis can be reached at firstname.lastname@example.org.
By DAVID TUTHILL
Josh Clay sometimes speaks at such a frantic speed he needs to slow himself down.
But he speaks with authority on so many topics – from theater, to the band Green Day, to the world of comedy – that you would never believe the challenges he’s overcome.
The 15-year-old was born with Asperger’s syndrome. Considered to be at the high-functioning end of the autism spectrum, those with Asperger’s often have difficulty with social interactions, and may exhibit compulsive behaviors and repetitive movements. They also tend to show an intense, all-absorbing interest in topics they enjoy.
In preschool, Josh often hit milestones later than his classmates, and he exhibited behavioral tics associated with Asperger’s.
In elementary school, he was placed on an Individualized Education Plan to help him navigate the special education he needed, which seemed to work. He was on an adequate academic pace and he made good acquaintance with fellow students. Thanks to a strict school policy, bullies were virtually nonexistent.
When it was time to start middle school, other potential issues came into focus. Josh was an “out of zone” Title I student for elementary school, but a lack of room in the preferred middle schools meant Josh would have to attend the school near his address, where he knew no one, and no one knew him.
His parents, Edward and Julie Clay didn’t feel confident their neighborhood school in Naples, Florida, could accommodate him academically.
So, Edward and Julie decided to home-school Josh in sixth and seventh grade.
“Josh was academically fine in elementary school,” Julie Clay said. “He was just a little fidgety. We decided home schooling for middle school was probably for the best as he got older.”
Josh’s sixth- and seventh-grade years were successful. His mother had no plans of putting Josh back in school, but things were about to change.
Knowing his diagnosis meant he would always need extra attention and therapy, Julie Clay took Josh to a behavioral therapist before he started eighth grade this year.
The therapist told her about two things that would change the direction of Josh’s education: the Gardiner Scholarship for families with children with certain medical diagnoses, such as Asperger’s, and De LaSalle Academy, a private school for students with special needs in nearby Fort Myers, Florida.
“When I heard about (De LaSalle) I thought, ‘Wow, this would be really great for him. Let’s walk down this path and see if it’s the right fit,’” Julie Clay said.
On his first visit to De LaSalle, Josh noticed how different the school was from his previous ones.
“I saw they all had classes with kids who reminded me of me,” he said. “I got along well with the teachers, and I liked that the only homework was classwork that we didn’t finish.”
While Josh was eager to attend and blend into the De LaSalle culture, there were some growing pains. He applied for and received the Gardiner Scholarship through Step Up For Students.
His situation was nothing new to De LaSalle Principal Lori Riti. Under her direction, the school’s speech language pathologist, social communication , occupational therapist and counselor all work in tandem for students like Josh.
“Josh came here with some social issues, mainly with getting along and connecting in a way with other kids that was healthy,” Riti said.
Some of the issues Josh mastered at De LaSalle Academy were interpreting nonverbal communication and perception, as well as conflict resolution. The school’s specialists made tremendous strides with him. One of his closest friends at school was once a child with whom he argued and fought with regularly.
“Josh had some onboard skills, but he had to take where he was and develop much further,” Riti said. “He wasn’t successful until he had direct intensive work. I give a lot of credit to our teachers and advisors for his success.”
His achievements aren’t limited to the classroom. Josh has become one of De LaSalle’s star theater performers. He recently starred as Long John Silver in the school’s rendition of “Treasure Island.”
This winter, the school’s Performing Arts Club will perform the Christmas classic, “It’s a Wonderful Life.” De LaSalle’s stage will be designed to look like an old-time radio station, and Josh will play several roles, including the “warped and frustrated” Mr. Potter, Mr. Gower, the druggist, and Ernie, the cab driver.
A natural performer, his penchant for inspiring laughter at school is legendary.
On a recent weekday, he told one of his favorite jokes about ordering steak at a restaurant: “When they asked how I wanted it cooked, I said, ‘On a stove.’”
While Josh’s favorite band is Green Day, he strongly warns against their occasionally profane language. The family saw the band perform live in September. Since the tickets were purchased in January, Josh had to wait nine months.
It was worth it.
The show, he said, “was legendary.”
Josh said he hopes to someday attend Florida Gulf Coast University in Fort Myers, where he wants to continue improving his acting chops and hone his comedic talent.
As for his experiences at De LaSalle, he couldn’t be happier.
“For parents who want to send their kids to this school, well, it’s the greatest school in the universe,” Josh said. “It will be the greatest move you ever do.”
David Tuthill can be reached at email@example.com.
By GEOFF FOX
Wesley Hamilton, a curious, curly-haired six-year-old was blessed with a high IQ.
When he was 3, a preschool teacher asked his class to say words that started with “a.” While many of his classmates answered “apple” or “ant,” Wesley said, “actually.”
He started having some uncommon struggles at a young age, said his mother, Emily Ashworth Hamilton, chief technology officer with ABB Optical Group in Coral Springs.
He didn’t like having his fingernails clipped.
He wouldn’t touch things with his hands, including food.
He stopped making eye contact with other people.
He had trouble sleeping, and when he did sleep, he often had nightmares.
He also would overreact to “the simplest things,” said Ashworth Hamilton, who lives in Miami with Wesley, her 2-year-old daughter Holly and husband Bill Hamilton, a mobile software architect with AT&T.
“He would have kind of the classic 2-year-old temper tantrum, but they never ended,” she said. “Not only in the moment, but they’d just never stop. His language was sort of odd, too, but he was incredibly verbal. His sentences were very deliberate, but the words he used were huge.”
In April 2015, Wesley was diagnosed as being on the “high-functioning” end of the autism spectrum.
Ashworth Hamilton eventually applied for and received a Gardiner Scholarship through Step Up For Students. The state-funded scholarship is for students between 3 and 22 and who have disabilities including: autism spectrum disorder, muscular dystrophy, cerebral palsy, Down syndrome, Spina bifida and other impairments.
The scholarship allows parents to personalize their child’s education by directing money toward schools, therapists, specialists, curriculum and technology, as well as a college savings account.
Last year, Wesley’s family used the scholarship to help pay for Applied Behavior Analysis therapy through Optimum Behavioral Services in Sunrise. Ashworth Hamilton said the therapy is not covered by her insurance.
Much of Wesley’s first year of therapy was not spent in a school or social setting, but “in a clinical environment,” she said.
“It could pertain to playing with others appropriately, or in a classroom, or following the instructions of a parent or adult in charge – how to react appropriately in certain situations,” Ashworth Hamilton said.
“(Children on the autism spectrum) have to be explicitly taught. They can’t simply observe or follow other people’s leads.”
Blanca Onetto, clinical director at Optimum Behavioral Services, where Wesley is a patient, said therapists quickly realized Wesley was very bright, with an enthusiasm for learning and a healthy sense of humor.
She said he enjoys music – particularly Queen’s classic rock hit, “We Will Rock You” – using his iPad, building with blocks, and playing with toy airplanes, cars and construction materials.
However, Onetto said, Wesley had difficulty communicating “across multiple contexts,” such as “social-emotional reciprocity,” non-verbal communication used in social interaction, and developing, maintaining and understanding relationships.
Sometimes, Onetto said, he threw the tantrums his mother described, displayed physical aggression and had anxiety issues.
Peer training, positive reinforcement and “naturalistic-incidental teaching” at the center has helped improve his conversational skills, while therapies to assist with shyness and impatience have included participation in a social skills group that features role playing.
To address tantrums and aggression, the center has used therapies that “decrease Wesley’s inappropriate behaviors by replacing them with appropriate ones,” Onetto said.
“Our goal is to teach Wesley appropriate social interactions, which at the same time would help to develop many other skills, including listening, attention, reading body language and social references,” she said. “He has shown considerable progress on all his treatment goals, but we will continue working on achieving higher standards.”
Onetto’s team of therapists have accompanied Wesley to school, thanks to Gardiner. This has helped Wesley transition into an academic environment and a mainstream classroom successfully with the support he needs.
Ashworth Hamilton said she did not want Wesley to go to his neighborhood elementary school, where, thanks to his high IQ, he would likely have been mainstreamed into a large class with a teacher who may not have experience handling students with special needs.
Through the Gardiner Scholarship, Wesley attends Miami Shores Presbyterian Church School, a kindergarten- through fifth-grade private school with a preschool program. He is now in first grade.
Ashworth Hamilton said she’s now optimistic Wesley will be better able to manage his anxieties, focus on tasks and increase his “functional capabilities.” His successful integration into a mainstream classroom is due to the partnership at school between parents, teachers and therapists and is building a strong foundation for Wesley.
“The goal is to build him up so the support needed will decrease over time,” his mother said. “I think he will continue to need a learning environment that is very much able to have some flexibility with his learning style; he’s very visual and has lots of sensory stimuli to contend with.”
Onetto is also impressed.
Because Wesley is high-functioning, Onetto said she doesn’t see any reason why he won’t be able to someday live independently and lead a fulfilling life.
“Each individual with autism is unique,” she said. “Many of those on the autism spectrum have exceptional abilities in visual skills, music, and academic skills. About 40 percent have average to above-average intellectual abilities. Indeed, many persons on the spectrum take deserved pride in their distinctive abilities and atypical ways of viewing the world. Others with autism have significant disability and are unable to live independently.
“With the appropriate support, (Wesley) will be a productive and successful citizen – maybe another Bill Gates!”
Reach Geoff Fox at Gfox@sufs.org.
By GEOFF FOX
Missy Futrell and her husband Carl wanted nothing more than to raise a family of their own.
When they were still childless after 13 years of marriage, the Futrells began exploring adoption. It wasn’t a quick process. For a few years, the Jacksonville, Florida, couple viewed scores of profiles of children up for adoption and were interested in many. Every time, though, adoption coordinators didn’t think the match was right.
But the Futrells were persistent. Eventually, Missy Futrell saw a picture of an 18-month-old boy named Treston.
He wasn’t an “ordinary” baby. Besides being born with fetal alcohol syndrome, Treston – or “Trey” – was diagnosed with mosaic Down syndrome, a type of Down syndrome in which a percentage of a person’s cells have an extra copy of the 21st chromosome. Mosaic Down syndrome is extremely rare, affecting 2 to 4 percent of Down syndrome cases; about one in 27,000 people are diagnosed with it, according to the International Mosaic Down Syndrome Association.
Trey also has autistic tendencies, but none of that mattered to the Futrells.
“The adoption workers made it seem so bad; they said he may never walk, read or speak – and he would need lifelong care,” Missy Futrell said. “That seemed odd to me. They had nothing really positive to say about this child. We had had several miscarriages and if I was having a baby, I wouldn’t care (about the diagnoses). That’s my child.”
Carl, who helps manage a local funeral home, said the couple was equally resolute.
“They told us, ‘He’s not normal, do you still want him?’” he said. “Well, how do they know if we’re the ones who aren’t normal? What’s normal? The way somebody acts? Everybody acts differently. When you love somebody, you see them in a different way. If you love something, it’s 100 percent perfect for you.”
The Futrells adopted Trey in 2008 and despite Trey’s challenges, he thrived. The family was happy and Trey was growing up in a loving environment. The Futrells, who have been married 21 years, also recently adopted a 2-year-old girl, MaryBelle. They have also provided foster care for other children.
When it was time for Trey to begin school, Missy Futrell, who had worked in the recruiting and staffing field, decided to homeschool him through kindergarten and first grade.
A couple of years ago, the Futrells learned about the Gardiner Scholarship managed by Step Up For Students. The scholarship helps parents individualize the educational plans for their children with certain special needs, including autism, spina bifida, cerebral palsy and Down syndrome.
With the scholarship, parents can direct funds toward a combination of programs and approved providers, which may include schools, therapists, specialists, curriculum, technology and a college savings account. The average scholarship is worth $10,000. The Futrells applied for the scholarship and Trey was accepted.
Last year, Trey, who recently turned 10, went to second grade at a private school for children with learning disabilities or emotional issues.
It didn’t go well.
“Trey is an extremely trusting and sweet child,” Missy Futrell said. “He’s very quiet in public, and he is nervous around large crowds, new people and children. At home, he’s a lot more talkative, but he doesn’t talk much in social situations and can be awkward socially as well. He went (to the private school) all last year and made little progress academically. He also doesn’t interact with the others and was bullied. It just wasn’t a good fit for him.”
Thanks to the scholarship’s flexibility, Missy Futrell home-schooled him last year, as she was able to give him an environment that puts him at ease and the one-on-one attention he needs. Much of the scholarship money now goes toward curriculum, including online courses, and various technology, as Trey works much better with computers than pen and paper.
The family has used Step Up’s Purchase Assistance with Best Buy Education program, a partnership that allows Gardiner Scholarship parents to easily purchase items, many of which are pre-approved. Best Buy Education bills Step Up, which pays through the student’s scholarship account. Parents praise the program because many struggle to pay for all the care that comes with raising a child with special needs, so it can be tough to wait for reimbursements out of the scholarship account for big-ticket items.
“When I heard about Step Up’s Purchase Assistance with the Best Buy Education program, I jumped on it,” Missy Futrell said. “He really does so much better with technology. When he has to write, it could take him 45 minutes to an hour to do a 10-question worksheet, because he has to make each letter perfectly or he (gets frustrated). Through use of an iPad or computer, I can see more of what he’s able to do. With the technology, he clicks it or touches it and he just likes it so much better. I’ve heard that a lot of kids with special needs are like that.
“We use Time4Learning online courses that has all different subjects. We use it on his computer and his confidence is really growing. When he does something right, it tells him, ‘Wonderful!’ Or, if he’s wrong, it tells him in ways that don’t upset him. I can gauge where he is and what he knows. And there are so many apps on the iPad. I can take a picture of his worksheets and it converts them to where he can type in the letters rather than write them.”
Among other things, the family has also purchased a Phillips Hue Table Lamp and color ambiance kits. Whenever Trey starts getting overwhelmed by something, they switch the light on to a color that helps calm him.
Thanks to the Amazon Echo, which uses the voice-controlled service, Alexa, Trey can also listen to relaxing music when he needs to. Because the device is compatible with the Phillips Hue Lamp, it helps him understand his moods.
“If he’s upset, we tell (Alexa) to make the light angry and it turns red,” Missy Futrell said. “He can see in color what his current mood is. It makes him understand more what he’s feeling and if he’s mad, then he needs to relax. It helps identify his behavior and also helps the people around him.”
Carl Futrell described Step Up’s Purchase Assistance with the Best Buy Education program as blessings for which his family is grateful.
“In order to raise children with special needs, you have to have those who are willing to help,” he said. “These things we can outsource, it helps our family. It’s hard to make ends meet. You keep working and working and you get that income, but you miss that time being with your family.
“Now, he can call me on Facetime on his iPad and just say, ‘Dad, what are you doing?’ And I ask him how his day is going and if he’s being good for his mom. He’s usually playing with his stuffed animals – he loves monkeys. He pretends they’re the Ninja Turtles.”
For the Futrell family, this is their normal. And it’s the family they always dreamed about having, one connected by unconditional love.
Step Up For Students, a Florida-based nonprofit, empowers parents to pursue and engage in the most appropriate learning options for their children, with an emphasis on families who lack the financial resources to access these options. By pursuing this mission, Step Up For Students helps public education fulfill the promise of equal opportunity. In addition to the Gardiner Scholarship Program which helps parents customize the education of their children, ages 3 to 22, with certain special needs, Step Up For Students also administers the income-based Florida Tax Credit Scholarship Program (FTC). With the FTC scholarship, economically disadvantaged parents of children in grades kindergarten through 12 are empowered to find the school – private or out-of-district public – that meets their child’s learning needs. Step Up For Students’ dedication, however, doesn’t end when students are awarded one of these scholarships. Through its Innovation Fund, Step Up helps maximize the impact of the scholarships by creating and enhancing education-based innovations that propel children toward a brighter future. To learn more about Step Up For Students, or to find out how you can help, please visit www.StepUpForStudents.org.
A COPY OF THE OFFICIAL REGISTRATION (CH-14609) AND FINANCIAL INFORMATION MAY BE OBTAINED FROM THE DIVISION OF CONSUMER SERVICES BY CALLING TOLL-FREE 1-800-435-7352 WITHIN THE STATE OR ON THEIR WEBSITE WWW.800HELPFLA.COM. REGISTRATION DOES NOT IMPLY ENDORSEMENT, APPROVAL, OR RECOMMENDATION BY THE STATE.
Geoff Fox can be reached at firstname.lastname@example.org.
Doug Tuthill, president of Step Up For Students, recently took a few moments to talk about his vision for the organization.
“We’re in the equal opportunity business,” Tuthill said. “We want to make sure that low-income children have the same opportunities more affluent kids have. We want to make sure special needs (students) have their needs met also.”