By ROGER MOONEY
Kaelani Dix can read. You can’t imagine what that means to her mother unless you have a child with dyslexia.
“Oh my gosh,” Kaelani’s mom, Kimberly Caleb, said. “I’m so grateful.”
Kaelani, 10, just finished the third grade at Pace Brantley School in Longwood, Florida, a private school, with grades 1 through 12, that specializes in teaching children who need specialized attention. Kaelani attends the school on a Florida Tax Credit Scholarship, one of two private school scholarships managed by Step Up For Students.
Caleb, who lives 40 minutes away in Orlando, found Pace Brantley when searching the internet for resources for kids with dyslexia in Central Florida. She learned while researching reading programs or services for students with special needs that Kaelani would benefit from a school that taught the Orton-Gillingham Approach. The Approach was developed in the 1930s to teach students with dyslexia how to read. It has been used at Pace Brantley for nearly 20 years.
Kaelani, who entered Pace Brantley as a first grader, began the Orton-Gillingham Approach when school began last August. By November, she was able to read “Put Me in the Zoo” by Robert Lopshire, as well as a few pages from her children’s bible.
“I remember people saying this year is a wash (for students) with everything in the pandemic,” Caleb said, “but this is the year my daughter learned to read.”
‘A significant commitment’
According to ortonacademy.org, the Orton-Gillingham Approach is “a direct, explicit, multisensory, structured, sequential, diagnostic, and prescriptive way to teach literacy when reading, writing, and spelling does not come easily to individuals, such as those with dyslexia.”
Orton-Gillingham focuses on the connection between letters and sounds then builds on those connections. Some schools use the Wilson Language or the Barton Reading and Spelling System to teach reading to special needs students. Both programs are offshoots of the Orton-Gillingham Approach.
At Pace Brantley, students usually are in the third grade to enter the Orton-Gillingham Approach after spending the first and second grades prepping for it.
“There’s music involved,” Pace Brantley Principal Jennifer Foor said of the prep work. “There is a lot of imagery involved that are building that working memory that they may be struggling with to get them to move into Orton, because when you move into the Orton program, it requires a lot of memory and working memory. You have to be able to learn information and hold on to it and still be able to pull previously learned information.”
The Approach is a three-year program for the students. They meet in small groups (no more than four students) three or four times a week, 40 minutes at a time. If they haven’t mastered reading in those three years, they can take a fourth year.
“It’s a pretty significant commitment as far as time goes,” Foor said. “Obviously, if we dedicate that much time for our students, we’re saying it works.”
When talking about the Orton-Gillingham Approach, Pam Tapley, Pace Brantley’s head of school, offered Kaelani is the success story for the 2020-21 school year.
“She came to us with no foundation,” Tapley said. “The teacher started with all of the early reading skills, the phonemic awareness, letter and sound recognition, and this is a little girl who is now reading and as importantly, because we’ve seen the two correlations, she’s writing.”
‘You’re giving them life’
Kaelani was speech-delayed, but Caleb was unaware her daughter was dyslexic.
“When she got into school she struggled tremendously. Nothing was clicking. It was difficult,” she said.
Kaelani repeated pre-K. Testing revealed she had specific learning disabilities and, while not officially diagnosed, Caleb said her daughter displayed all the symptoms and criteria of dyslexia.
That’s what sent Caleb searching for the proper school, a search that led her to Pace Brantley.
Caleb spent 15 years as an elementary and middle school teacher at district schools. She understands the importance of reading. Plus, everyone in the family is an avid reader. Books abound in their home.
Kaelani always wanted to read. She would even take a book and pretend she was reading it. And, if it was a page that had been read to her enough times, Kaelani could act as if she was reading by reciting what she had heard over and over.
Caleb bought “Put Me in the Zoo” and wanted Kaelani to read it before school. And one morning she did.
“This wasn’t a passage she was practicing. These were brand new words she hadn’t read. She sat there and started reading it,” Caleb said.
It was an emotional moment for a mother.
“I was just overwhelmed,” she said. “I compare a teacher who can teach a child how to read like a doctor. You’re giving them life. You’re saving a life. Especially one who struggles.
“My daughter wanted to read so bad. She would pick up books and pretend to read. Now that she can make sense of those words, I can’t describe it. I was so worried. I didn’t know what was wrong. I didn’t know why she couldn’t do what other kids do.”
Now Kaelani can do what the other kids can do. She can read.
“OK,” Caleb said, “she’s ready now and she’s able to excel.”
Roger Mooney, marketing communications manager, can be reached at firstname.lastname@example.org.
By LISA A. DAVIS
Hundreds of parents, guardians, students, and teachers joined Step Up For Students online May 21 to recognize the resilient senior Class of 2020 in a time when COVID-19 has added the new term social distancing to everyday vocabulary and canceled in-person milestone events.
The recorded virtual senior celebration can be viewed online here.
In their final two months of their high school careers, students nationwide had to finish their education virtually as stay-at-home orders shuttered school buildings, on March 16 in Florida. High school seniors perhaps felt the impact most, with senior events like prom and graduation being canceled or moved to drive-by parades and virtual celebrations. Soon after typical everyday life came to a halt, Step Up staff began planning the special online event for scholarship seniors.
“High school graduation is a time to celebrate the achievement of Florida’s young men and women and the current pandemic won’t stop us from recognizing the achievements of these special students,” said Doug Tuthill, president of Step Up.
Step Up For Students, a Florida-based nonprofit scholarship funding organization, manages the Florida Tax Credit Scholarship and Family Empower Scholarship for lower-income families, the Gardiner Scholarship for children with certain special needs, the Hope Scholarship for children who are bullied in public schools and the Reading Scholarship Accounts. For the 2019-20 school year, Step Up served more than 130,000 students, including 4,445 seniors.
Tuthill, Step Up Founder and Chairman John Kirtley, and corporate donor representatives addressed the Class of 2020 during the event. The Rev. Robert Ward of Mount Moriah Missionary Baptist Church in St. Petersburg gave the invocation.
State lawmakers congratulated the class of 2020 as well.
“Even though you’ve gone through strange times and faced many obstacles,” Sen. Manny Diaz, who serves as the Senate Committee on Education chair, said to the graduating seniors, “We are here today to give you a graduation message, and that is congratulations for your hard work.”
Added Rep. Susan Valdes, “Best of luck to you and go get them, Class of 2020. I know that our future is much brighter because of you.”
Paul Shoukry, a Step Up advisory board member and CFO for Raymond James Financial, a founding donor of Step Up’s Florida Tax Credit Scholarship Program, was one of several donor representatives who spoke during the 30-minute event.
“Continue investing in yourself, as this is an important step in a long and successful journey. Congratulations,” he said.
Step Up selected two scholarship students to address their peers.
Florida Tax Credit scholar Gabriella Bueno, of Boca Christian School, credited her scholarship with helping her get the education she needed to set her on a path to become a pharmacist.
“I have much to be grateful for and I would personally like to thank Step Up, the lawmakers who believe in education choice and the donor who support it. You have all allowed me to attend what I believe has been the best school for me and has helped shaped me into the person I am today.”
Gardiner scholar Ryan Sleboda, also shared his journey with autism, not being able to speak until the age of 7, and with the help of a scholarship graduating as the class valedictorian in unprecedented times.
“Who would have imagined this is the way our senior year would end,” said, Ryan Sleboda, a Gardiner Scholarship student and valedictorian from the Pace Brantley School in Longwood, Fla. “Class of 2020, let’s go forth and resume this incredible journey!”
Kirtley, Step Up’s founder, closed out the event, saying success should not be measured by the norm.
“Be conscious of what scoreboard you are using to measure yourself. I know mine has changed. Pursue those things that can be measured for sure — those grades, that college admission, that job, that raise, that promotion. But don’t forget to measure yourself by things that have no numbers or figures,” he said and continued telling a story about a cab that drove by him in New York City advertising the Broadway musical Rent, with the words “Measure your life in love.”
“Well that sign stopped me in my tracks,” he said. “And I realized right then that I needed to worry less about measuring my life in numbers, in figures, and maybe take the advice on that sign. And it took me a few more years to understand that it’s much more important to measure the love that you give, rather than the love that you receive.
“One of the ways that I measure the love that I give is what I do everyday to empower parents to choose the best education for their kids, and knowing that you are today are graduating is all the love I need in return and knowing that you will put that education to work in these interesting times.”
Lisa A. Davis can be reached at email@example.com.
By ROGER MOONEY
If it were any other spring but this one, Ryan Sleboda would stand in front of the graduates at the Pace Brantley School and, as valedictorian, would deliver his speech.
Ryan would tell the room filled with students and their families, teachers and administrators about living on the autism spectrum and how it shaped his life.
To illustrate his points, Ryan would hold a piece from a puzzle – the autism symbol.
One puzzle piece for his family. One for his friends. One for his teachers. Put them together and you see a picture forming of Ryan Sleboda.
“It’s going to bring people to tears,” Ryan, 19, said.
He hopes the visual has the same impact when viewed remotely. Since this is the age of the coronavirus, Pace Brantley’s 2020 graduation will be held virtually.
Disappointing, for sure, but not enough to damper Ryan’s enthusiasm for his graduation. Nothing really dampers his enthusiasm for anything.
“Ryan simply has a zest for life,” his mother, Susan, said.
That zest began to emerge when Ryan was 13. He joined a taekwondo class and developed self-confidence and a knack for leadership. It exploded two years later when Ryan attended Pace Brantley in Longwood, Florida as a ninth grader with the help of a Gardiner Scholarship managed by Step Up For Students.
The Gardiner Scholarship is for students with certain special needs.
During the 2019-20 school year, 13,035 schoolchildren received a Gardiner Scholarship, including 8,097 who are on the autism spectrum.
Susan and her husband Bill, who live in nearby Sanford, wanted to send Ryan to Pace Brantley for high school. Brantley is a grade 1 through 12 private school that specializes in teaching students who need individualized attention.
Susan said she knew the school would challenge Ryan both academically and socially. With the Gardiner Scholarship covering most of the cost of tuition, Susan said she and Bill could use other funds to pay for Ryan’s medical expenses and social activities, like taekwondo and a dance program.
Those are also pieces to the Ryan Sleboda puzzle. There are more. Many more.
You can add his attempts at playing soccer, baseball, basketball and swimming as a youngster, because Ryan’s inability to take to those sports is what led him to taekwondo.
And it was in taekwondo where Ryan began to find Ryan.
“It was,” Susan said. “Ryan had had many difficulties behaviorally and socially. Ryan had a lot of difficulty regulating his behavior. He didn’t speak until he was 7.
“He had a very difficult time. Kids could be mean, and some kids knew which buttons to push to get Ryan to explode, and he could be very explosive back then.”
Yet Ryan found a calmness in taekwondo, a martial art that emphasizes jumping, spinning and kicking.
Susan and Bill took him to Breaking Barriers Martial Arts in Sanford, which trains children with special needs.
“It was kids with disabilities helping others with disabilities,” Susan said. “Ryan took to it quickly.”
“I got more energy,” he said, “being more active and communicating with others, being around other people, and definitely the ability to be a leader.”
“Lots of confidence,” he said.
Ryan has earned a third-degree black belt and is a certified taekwondo instructor, teaching other special needs children on Saturday mornings.
“It makes me feel like a leader when I get that opportunity,” he said.
Ryan always wanted to be a leader, even when he was struggling to find himself on the baseball field or a basketball court. Society was telling Ryan what he couldn’t do, as it often does to children on the spectrum. His classmates and teammates were mean, as they often are to classmates and teammates who are perceived to be different. But Ryan felt it didn’t have to be that way, and he said he knew someday it wouldn’t.
He had weaknesses, sure. But Ryan also knew he had strengths.
Those strengths began to surface when Susan and Bill enrolled Ryan in Bridges Academy, a private K-12 school for children with autism and other special needs.
In an instant, Ryan was no longer different from his classmates.
“He was one of the students, and that’s what started him on the path to building self-confidence,” Susan said.
Ryan moved to Pace Brantley as a high school freshman. He was challenged, both inside and outside of the classroom. And he embraced those challenges.
“Ryan has grown up so much and truly wants to make a difference for others,” said Pam Tapley, Pace Brantley principal.
Not only will Ryan graduate as the class valedictorian, he is school president, an anchor of the school’s TV channel and a member of the running club.
He also gave a prerecorded speech online for Step Up For Students Class of 2020 Senior Celebration.
Ryan’s term project for the television class he took as a junior was a documentary on the history of Pace Brantley. He received an A for the assignment, and the video was voted the documentary of the year at the school.
The documentary also earned Ryan the University of South Florida’s Arts4AllFlorida program’s Student of the Month for Sept. 2019.
“The end product was wonderful, and he worked so hard on it to make it represent the history of our wonderful school,” Tapley said.
In collaboration with Chance 2 Dance, a program that works with students of all abilities, Ryan starred in a music video shot in the halls of Pace Brantley.
The song is “Waving Through a Window,” from the Broadway musical, “Dear Evan Hansen.”
“On the outside, always looking in
Will I ever be more than I’ve always been?”
The song symbolizes what children with special abilities go through.
Once, that was Ryan’s life.
That puzzle piece has been tossed aside by others, including ones that are yet to come.
Through his vocational rehab program, Ryan scored an internship with the Central Florida Zoo’s conservation education department. He is fascinated with wolves and tigers.
“Very unique animals,” Ryan said.
In the fall, he will begin classes at Beacon College in Leesburg, Florida.
The college serves students with learning disabilities. Ryan will major in anthrozoology. He hopes to someday work at an animal shelter or a zoo.
“I’d like to build a really good facility with a lot of animals,” he said. “I could have a training program of some kind.”
That’s another puzzle piece – his future.
Ryan could stand in front of a packed room or stare into his laptop for a virtual graduation ceremony and his message will be the same.
Yes, he is autistic.
No, it does not define him.
The puzzle pieces, they define him.
His family and friends. His school and teachers. Taekwondo. Dance. TV production. His love of animals. His desire for a career working with animals.
“Pretty much all the other stuff I’ve managed and done throughout my life,” he said.
Together, those pieces help build the picture of Ryan Sleboda. But it is far from complete, because there are still more pieces to come.
“I’m going to the next part of life,” Ryan said. “That will be extra hard, but I like challenges, and I am excited to see what comes next.”
Roger Mooney, marketing communications manager, can be reached at firstname.lastname@example.org.
By GEOFF FOX
Doctors didn’t expect Ben Zanca to live very long. Even before his birth, fluid was drained from his lungs every week for eight weeks until he was delivered.
Ben’s parents, Ann and Tony Zanca, were told Ben may need a chest tube after his birth and possibly surgery.
“But, when they put the (chest) tube in all the blood vessels shut down,” Ann Zanca said. “It’s called persistent pulmonary hypertension, which not many people survive at that age. He was transferred to Arnold Palmer Hospital for Children (in Orlando) where there is a heart-lung bypass machine.”
Things looked bleak.
“They told us he was going to die,” Tony Zanca said. “They called in a priest and everything.”
Fortunately, a nitric oxide treatment worked and Ben did not have to go on the lung-heart bypass machine.
“They said they’d never seen a baby as sick as Ben pull through,” Ann Zanca said.
Unfortunately, Ben’s medical struggles and the family’s worries were only beginning. Problems with his blood vessels went misdiagnosed for more than 12 years.
About 18 months ago, Ben, now an outgoing 14-year-old who loves camping, was finally diagnosed with CLOVES syndrome, an extremely rare disorder characterized by tissue overgrowth and complex vascular malformations. Worldwide, less than 200 cases of CLOVES syndrome have ever been identified, according to information from Boston Children’s Hospital.
Because of CLOVES, Ben is at risk for developing blood clots and has regular doctor visits to monitor his vascular health.
That’s not his only issue. Shortly after he was born, Ben was diagnosed with cerebral palsy. He also has been diagnosed on the autism spectrum and deals with epilepsy and asthma.
Until the current school year, he attended public school in Altamonte Springs, Florida, where he lives with his family, including 9-year-old sister Megan. Tony Zanca works in the parts department of a local auto dealer and Ann works part-time jobs as a computer programmer analyst and as an advocate for parents with children who have an Individualized Educational Plan.
Ben was not thriving at the public school.
“It’s not that they didn’t care, but he wasn’t going anywhere; he was going backward,” Tony Zanca said. “Teachers have their hands tied with all the new testing and all they did was quizzing for the test. There was no hands-on learning, which is what Ben thrives on.”
For years, Ann Zanca wanted to enroll Ben in the nearby Pace Brantley School in Longwood, but the family couldn’t afford it. Established in 1971, the school has always been geared toward students with learning issues. It is situated on nine wooded acres that offer a serene setting.
Eventually, a friend told Ann Zanca about the Gardiner Scholarship for children with certain special needs; the scholarship is managed by Step Up For Students. In 2016, the Zancas applied for the scholarship – which can help families pay for tuition at partner schools, approved therapists, specialists, curriculum, technology or even a college savings account – and Ben was accepted.
“Ben is very social and I don’t want him to miss out on the experience of school,” Ann Zanca said. “They have a well-rounded curriculum and lots of extra-curricular activities. They even have a prom. I was also concerned if it would be academic enough. Of all the places I knew of or visited, it seemed to be up to standards.
“It seems to challenge him but he doesn’t seem overwhelmed. There are people there to help him. We do have a private tutor for math. His teacher tells me he’s definitely challenged in pre-algebra, but he’s doing well. That makes me happy. The goal is that he’ll be able to get a regular diploma and either go to vocational school or college afterward.”
Now in eighth grade, Ben enjoys going to school. Due to his medical issues, he often has doctor’s appointments during the school day. Before, his mother said, he would sometimes call from school to see if she could pick him up early. Now, he doesn’t want to leave Pace Brantley’s campus.
While he has historically struggled with reading, English is now one of his favorite subjects, along with math.
“We were learning substitution, the three ways of substitution in math,” Ben said after a recent day at school. “That’s in algebra; it’s coming along.”
Of his favorite times of day is FLEX (Focused Learning Experience) Time, when students can choose a subject of their own to explore after lunch. Activities can include arts and crafts, learning a foreign language, tennis, yoga, tai chi or taking virtual field trips on a Smartphone.
On this particular day, Ben chose art.
“We were drawing different types of flags and what they look like,” he said. “I drew the Florida flag.”
Jennifer Portilla, Ben’s reading and language arts teacher, said she has seen him flourish since the school year began.
“He seems really comfortable and he’s willing to take risks. He’s not afraid to not be successful” in class, she said. “Academically, he’s making strides. He’s a pretty good writer for his age. He is able to write an essay and he doesn’t seem to struggle as much as at the beginning of the year.”
One of Ben’s other interests is the Boy Scouts. Despite his son’s many medical obstacles, Tony Zanca said he tries to treat him “like any other boy would be treated.” On a recent Boy Scout camping trip, he allowed Ben to paddle on a canoe with another scout.
“Years ago, I would never let him out in canoes down the river without me,” Tony Zanca said. “But it’s like I told him, ‘I’m going to have to start letting you do things by yourself, make your decisions and not do things wrong’. Someday soon, I’ll let him go on a (Boy Scout) camping trip by himself.”
The Zancas say that while Ben is obviously aware that he has medical issues, he doesn’t dwell on them. Because CLOVES can cause blood clots (Ben has had a few), they constantly monitor how he’s feeling. Now that he’s at Pace Brantley, which has a nurse on campus, his parents are more at ease.
“The scholarship was huge, like the answer to our prayers,” Ann Zanca said. “His self-confidence has increased tremendously. It’s a lot of hands-on learning. He made a car out of a Coke bottle and started telling me about Newton’s Laws of Motion. His self-confidence has increased tremendously.”
Reach Geoff Fox at Gfox@sufs.org.