By DAVID TUTHILL
Josh Clay sometimes speaks at such a frantic speed he needs to slow himself down.
But he speaks with authority on so many topics – from theater, to the band Green Day, to the world of comedy – that you would never believe the challenges he’s overcome.
The 15-year-old was born with Asperger’s syndrome. Considered to be at the high-functioning end of the autism spectrum, those with Asperger’s often have difficulty with social interactions, and may exhibit compulsive behaviors and repetitive movements. They also tend to show an intense, all-absorbing interest in topics they enjoy.
In preschool, Josh often hit milestones later than his classmates, and he exhibited behavioral tics associated with Asperger’s.
In elementary school, he was placed on an Individualized Education Plan to help him navigate the special education he needed, which seemed to work. He was on an adequate academic pace and he made good acquaintance with fellow students. Thanks to a strict school policy, bullies were virtually nonexistent.
When it was time to start middle school, other potential issues came into focus. Josh was an “out of zone” Title I student for elementary school, but a lack of room in the preferred middle schools meant Josh would have to attend the school near his address, where he knew no one, and no one knew him.
His parents, Edward and Julie Clay didn’t feel confident their neighborhood school in Naples, Florida, could accommodate him academically.
So, Edward and Julie decided to home-school Josh in sixth and seventh grade.
“Josh was academically fine in elementary school,” Julie Clay said. “He was just a little fidgety. We decided home schooling for middle school was probably for the best as he got older.”
Josh’s sixth- and seventh-grade years were successful. His mother had no plans of putting Josh back in school, but things were about to change.
Knowing his diagnosis meant he would always need extra attention and therapy, Julie Clay took Josh to a behavioral therapist before he started eighth grade this year.
The therapist told her about two things that would change the direction of Josh’s education: the Gardiner Scholarship for families with children with certain medical diagnoses, such as Asperger’s, and De LaSalle Academy, a private school for students with special needs in nearby Fort Myers, Florida.
“When I heard about (De LaSalle) I thought, ‘Wow, this would be really great for him. Let’s walk down this path and see if it’s the right fit,’” Julie Clay said.
On his first visit to De LaSalle, Josh noticed how different the school was from his previous ones.
“I saw they all had classes with kids who reminded me of me,” he said. “I got along well with the teachers, and I liked that the only homework was classwork that we didn’t finish.”
While Josh was eager to attend and blend into the De LaSalle culture, there were some growing pains. He applied for and received the Gardiner Scholarship through Step Up For Students.
His situation was nothing new to De LaSalle Principal Lori Riti. Under her direction, the school’s speech language pathologist, social communication , occupational therapist and counselor all work in tandem for students like Josh.
“Josh came here with some social issues, mainly with getting along and connecting in a way with other kids that was healthy,” Riti said.
Some of the issues Josh mastered at De LaSalle Academy were interpreting nonverbal communication and perception, as well as conflict resolution. The school’s specialists made tremendous strides with him. One of his closest friends at school was once a child with whom he argued and fought with regularly.
“Josh had some onboard skills, but he had to take where he was and develop much further,” Riti said. “He wasn’t successful until he had direct intensive work. I give a lot of credit to our teachers and advisors for his success.”
His achievements aren’t limited to the classroom. Josh has become one of De LaSalle’s star theater performers. He recently starred as Long John Silver in the school’s rendition of “Treasure Island.”
This winter, the school’s Performing Arts Club will perform the Christmas classic, “It’s a Wonderful Life.” De LaSalle’s stage will be designed to look like an old-time radio station, and Josh will play several roles, including the “warped and frustrated” Mr. Potter, Mr. Gower, the druggist, and Ernie, the cab driver.
A natural performer, his penchant for inspiring laughter at school is legendary.
On a recent weekday, he told one of his favorite jokes about ordering steak at a restaurant: “When they asked how I wanted it cooked, I said, ‘On a stove.’”
While Josh’s favorite band is Green Day, he strongly warns against their occasionally profane language. The family saw the band perform live in September. Since the tickets were purchased in January, Josh had to wait nine months.
It was worth it.
The show, he said, “was legendary.”
Josh said he hopes to someday attend Florida Gulf Coast University in Fort Myers, where he wants to continue improving his acting chops and hone his comedic talent.
As for his experiences at De LaSalle, he couldn’t be happier.
“For parents who want to send their kids to this school, well, it’s the greatest school in the universe,” Josh said. “It will be the greatest move you ever do.”
David Tuthill can be reached at firstname.lastname@example.org.
By GEOFF FOX
Wesley Hamilton, a curious, curly-haired six-year-old was blessed with a high IQ.
When he was 3, a preschool teacher asked his class to say words that started with “a.” While many of his classmates answered “apple” or “ant,” Wesley said, “actually.”
He started having some uncommon struggles at a young age, said his mother, Emily Ashworth Hamilton, chief technology officer with ABB Optical Group in Coral Springs.
He didn’t like having his fingernails clipped.
He wouldn’t touch things with his hands, including food.
He stopped making eye contact with other people.
He had trouble sleeping, and when he did sleep, he often had nightmares.
He also would overreact to “the simplest things,” said Ashworth Hamilton, who lives in Miami with Wesley, her 2-year-old daughter Holly and husband Bill Hamilton, a mobile software architect with AT&T.
“He would have kind of the classic 2-year-old temper tantrum, but they never ended,” she said. “Not only in the moment, but they’d just never stop. His language was sort of odd, too, but he was incredibly verbal. His sentences were very deliberate, but the words he used were huge.”
In April 2015, Wesley was diagnosed as being on the “high-functioning” end of the autism spectrum.
Ashworth Hamilton eventually applied for and received a Gardiner Scholarship through Step Up For Students. The state-funded scholarship is for students between 3 and 22 and who have disabilities including: autism spectrum disorder, muscular dystrophy, cerebral palsy, Down syndrome, Spina bifida and other impairments.
The scholarship allows parents to personalize their child’s education by directing money toward schools, therapists, specialists, curriculum and technology, as well as a college savings account.
Last year, Wesley’s family used the scholarship to help pay for Applied Behavior Analysis therapy through Optimum Behavioral Services in Sunrise. Ashworth Hamilton said the therapy is not covered by her insurance.
Much of Wesley’s first year of therapy was not spent in a school or social setting, but “in a clinical environment,” she said.
“It could pertain to playing with others appropriately, or in a classroom, or following the instructions of a parent or adult in charge – how to react appropriately in certain situations,” Ashworth Hamilton said.
“(Children on the autism spectrum) have to be explicitly taught. They can’t simply observe or follow other people’s leads.”
Blanca Onetto, clinical director at Optimum Behavioral Services, where Wesley is a patient, said therapists quickly realized Wesley was very bright, with an enthusiasm for learning and a healthy sense of humor.
She said he enjoys music – particularly Queen’s classic rock hit, “We Will Rock You” – using his iPad, building with blocks, and playing with toy airplanes, cars and construction materials.
However, Onetto said, Wesley had difficulty communicating “across multiple contexts,” such as “social-emotional reciprocity,” non-verbal communication used in social interaction, and developing, maintaining and understanding relationships.
Sometimes, Onetto said, he threw the tantrums his mother described, displayed physical aggression and had anxiety issues.
Peer training, positive reinforcement and “naturalistic-incidental teaching” at the center has helped improve his conversational skills, while therapies to assist with shyness and impatience have included participation in a social skills group that features role playing.
To address tantrums and aggression, the center has used therapies that “decrease Wesley’s inappropriate behaviors by replacing them with appropriate ones,” Onetto said.
“Our goal is to teach Wesley appropriate social interactions, which at the same time would help to develop many other skills, including listening, attention, reading body language and social references,” she said. “He has shown considerable progress on all his treatment goals, but we will continue working on achieving higher standards.”
Onetto’s team of therapists have accompanied Wesley to school, thanks to Gardiner. This has helped Wesley transition into an academic environment and a mainstream classroom successfully with the support he needs.
Ashworth Hamilton said she did not want Wesley to go to his neighborhood elementary school, where, thanks to his high IQ, he would likely have been mainstreamed into a large class with a teacher who may not have experience handling students with special needs.
Through the Gardiner Scholarship, Wesley attends Miami Shores Presbyterian Church School, a kindergarten- through fifth-grade private school with a preschool program. He is now in first grade.
Ashworth Hamilton said she’s now optimistic Wesley will be better able to manage his anxieties, focus on tasks and increase his “functional capabilities.” His successful integration into a mainstream classroom is due to the partnership at school between parents, teachers and therapists and is building a strong foundation for Wesley.
“The goal is to build him up so the support needed will decrease over time,” his mother said. “I think he will continue to need a learning environment that is very much able to have some flexibility with his learning style; he’s very visual and has lots of sensory stimuli to contend with.”
Onetto is also impressed.
Because Wesley is high-functioning, Onetto said she doesn’t see any reason why he won’t be able to someday live independently and lead a fulfilling life.
“Each individual with autism is unique,” she said. “Many of those on the autism spectrum have exceptional abilities in visual skills, music, and academic skills. About 40 percent have average to above-average intellectual abilities. Indeed, many persons on the spectrum take deserved pride in their distinctive abilities and atypical ways of viewing the world. Others with autism have significant disability and are unable to live independently.
“With the appropriate support, (Wesley) will be a productive and successful citizen – maybe another Bill Gates!”
Reach Geoff Fox at Gfox@sufs.org.
By GEOFF FOX
It was just after 10 a.m. and dozens of students at Pace Brantley School were in the middle of campus, kicking soccer balls in a large field, playing on a jungle gym, swinging and jumping rope under a cloudless sky.
Their voices and laughter were carried on a light breeze that shook Spanish moss in dozens of majestic oak trees that line the sprawling, nine-acre campus.
It was eighth-grader Ben Zanca’s favorite time of day.
“I like it because I get to make friends, and you get to do a lot of fun things,” he said.
Ben has asthma, cerebral palsy, autism and CLOVES syndrome, a rare disorder characterized by tissue overgrowth and complex vascular malformations. After struggling in public school and at a charter school, he was thriving in his first year at Pace Brantley.
“His self-confidence has increased tremendously,” said his mother, Ann Zanca. “It’s a lot of hands-on learning. He made a car out of a Coke bottle and started telling me about Newton’s laws of motion. His reading had regressed when he went into middle school, but here his reading, spelling and writing has much improved. And he’s enthusiastic about going to school.”
In 2016-17, Pace Brantley served over 170 second- to 12th grade students. Ben was one of about 35 students on the Gardiner Scholarship for students with certain special needs. The scholarship is managed by Step Up For Students.
The school includes seven buildings, an outdoor basketball court and well-manicured football and baseball fields. The campus had one building, a former house, when the school opened in 1971. Additional buildings have been added as needed, and as money was available. The school has always been geared toward students with learning issues.
“The majority of our students have a difficulty such as auditory processing disorder, dyslexia or ADHD,” said Jennifer Foor, Pace Brantley’s elementary and middle school principal. “Some of them are on the autism spectrum, but on the high-functioning side. The kids on the spectrum are not here because of behavior concerns.”
Pace Brantley currently has three mental health counselors on campus, as well as an occupational therapist, speech pathologist and full-time nurse who specializes in handling students with anxiety issues.
This year, the school even “hired” Ben, a therapy dog who lives with school nurse Tara Mahoney and comes with her to work every day – like a law enforcement K-9 officer. An American breed mix, Ben is quick to lick the hands of strangers. When he is tired, he is not shy about dropping to the floor and stretching with a low yowl.
Ben has been immensely popular since his Jan. 3 debut on campus. Whenever students are feeling especially anxious, they can see Mahoney – and Ben.
“It’s positive redirection and visualization. I speak in a calm voice and there’s low lighting,” Mahoney said. “We typically end up on the floor. They can convey their feelings to Ben or just pet him. Usually, after 10 or 15 minutes they’re ready to go back to class. There’s a more relaxing vibe with him being here. He makes everybody feel more comfortable.”
Pam Tapley, who has been Pace Brantley’s head of school for three years, is always looking to incorporate effective, innovative concepts to benefit her students. She was previously an assistant superintendent of schools in Osceola County and has been a high school principal.
“I’m passionate about providing the environment that allows students with differences to be celebrated and surrounded by people who honor and respect that, but also believe they can be successful,” Tapley said. “We have a wrap-around philosophy. We want to provide the environment for students to be successful, but we do it with the parents, with the occupational therapy, with the speech therapy, the mental health therapy.
“We wrap the whole family into the support. A lot of times the families are frustrated. They’re seeking answers and support and we give that to them here. They don’t feel isolated anymore.”
The environment includes everything from cutting-edge technology in classrooms to practical lessons outdoors.
For example, there is a television production studio, where morning announcements are made under the supervision of instructor Katie Nichols and broadcast through the school. The studio features a green virtual television studio background, Macintosh computers, iMovies for editing, three cameras and a teleprompter.
There is also a greenhouse, where students grow snap peas, tomatoes, lettuce, kale and cabbage under the guidance of science teacher Suzy Grimm. Toward the back of the campus is the Arts Building, where drama classes are held. This year, the school is working on a production of “Aladdin.”
Ninth-grader Ryan Sleboda, a first-year student at Pace Brantley, said he loves the school.
“It’s more challenging than my other schools,” said Ryan, a Gardiner scholar who was diagnosed with autism. “The other schools just did the basics. This really is way more interesting.”
Those on the autism spectrum also benefit from social skills groups in which they learn to better interact with their peers.
“They go over eye contact and body language during personal interaction,” Foor said. “They learn how to react in situations and have conversations.”
The campus’ newest building is the high school, which opened in the 2010-11 school year. Besides classrooms and lockers, the high school features a complete science lab.
“They do dissections in there and everything,” Foor said.
According to Tapley, the school may not be done growing. She hopes to begin a capital campaign to build a vocational center on campus. Tapley is involved with the Greater Sanford Chamber of Commerce and often talks to business leaders in the community to determine what kind of employees they need.
It’s a way of helping her students succeed after graduation.
“What are we providing in a learning situation that gives them the time to learn to be valuable employees?” Tapley said. “We’re gathering the data now. We’re looking at (careers in) plumbing, construction, air-conditioning, culinary and early childhood. We want to look at the employability rates, because you don’t want to flood the market.”
Susan Sleboda, Ryan’s mother, said the school has been a blessing for her entire family.
“He has blossomed because of being at that school,” she said. “What they offer these kids – the environment, in particular – is in my opinion revolutionary. For a child like mine, who can’t typically succeed in a learning environment, it’s like a puzzle fitting together. For Ryan, it provides the perfect environment. The teachers are understanding of your child’s disabilities, as well as their abilities.
“It would be difficult to afford without the scholarship. It would be like paying another college tuition.”
Geoff Fox can be reached at email@example.com.
By GEOFF FOX
Nataleigh Monterio put on her pink riding helmet and light-up cowboy boots.
“I’ve been riding horses my entire life,” said Nataleigh, 9. “Sometimes they answer questions. Miss Patty will ask them yes or no questions and they shake their head yes.”
Nearby, her classmate, Xavier Cebollero, 8, watched with envy. With a cast covering his left forearm after a tumbling accident, he was unable to ride that day.
“Some of the horses are a pain, because they don’t listen to me,” he said. “They speak horse.”
Nataleigh and Xavier, both third-graders, are two of HOPE Ranch’s 125 students. About 60 percent of the students are on the Gardiner Scholarship for students with certain special needs; Natalie and Xavier have diagnoses on the autism spectrum. The scholarship is managed by Step Up For Students.
“Some of these kids have been bullied and abused,” said Jose Suarez, who has run the school since 2005 with Ampy, his wife of 34 years. “They don’t trust people and adults.”
The school’s horsemanship classes are taught by Patty Anderton – known to the students as “Miss Patty.” Anderton used to run a business in Odessa, Florida, where she taught clients the finer points of horse riding. About six years ago, Jose Suarez asked her to help out at the school temporarily. It turned into a full-time job and Anderton hasn’t looked back.
“I love it here,” she said. “It’s much different. My clients before were usually adults and I wanted something different.”
As Anderton spoke, Nataleigh navigated Georgie around a figure eight pattern and had her trot at different speeds.
“The horses help bring them out of their shell,” she said. “A lot of them haven’t had the greatest life in school. They don’t trust a whole lot and the horses help bring that trust out.”
While horse riding is a popular activity, none of the students automatically get to ride every week.
“Horsemanship is a class, but riding is a privilege,” Jose Suarez said. “They have to have their grades and behavior under control. They have to earn it.”
The Suarezes opened the ranch in 2005, originally for troubled children. By then the couple, who have two adult children, had been caring for foster children for two years. Not long after opening the ranch, the mother of an autistic child approached them about expanding the program.
Ampy Suarez couldn’t say no.
“We want to give them opportunities that they never would have had otherwise,” she said.
It seems to be working. A discussion Nataleigh and Xavier had in the horse arena demonstrated genuine enthusiasm among the students.
“I just love this school, in general,” Nataleigh said. “When I was five or six, I went to a completely different school. When I was really young, I was really picky, though. They didn’t have a barn; they didn’t have any animals.”
“In Miss Patty’s class, we get to go on field trips. We went to We Rock the Spectrum in Pinellas County,” Xavier said, referring to the Clearwater gym with equipment designed to help children with sensory processing disorders. “We also went to The Brick University (an art school for children). We got to make a plane and a cupcake out of LEGOs.”
Xavier wasn’t done talking, but Natalie’s excitement prevented her from staying quiet.
“One week every year, we have Spirit Week,” she said.
Xavier started to speak again.
“Xavier, calm yourself,” she said. “Then, on a specific day, we have Character Day.”
“That’s when we get to dress up like any character,” he said.
“Yes, thank you, Xavier,” she said. “I went as a HOPE Ranch Learning Academy fairy. I had a little skirt and fairy wings, and it was really cute.”
“I was a mixture of super heroes,” he said. “I had a Captain America mask and a Superman cape.”
“He was Super Ultra Xavier!” she said.
As the school continues to grow, Jose Suarez said it will expand. He expects 200 students next year.
“We’ll need to beef up our infrastructure and maybe open another campus,” he said.
Suarez attributed the school’s growth to word-of-mouth advertising among parents of children with special needs, as well as a Google arrangement that drives Internet browsers to HOPE Ranch’s website.
“I’m starting to get requests from across the nation,” he said. “I recently got a call from Wisconsin. They said, ‘If that’s the right school, we’ll move.’”
Reach Geoff Fox at firstname.lastname@example.org.
By SUSAN SLEBODA, GUEST BLOGGER
My son, Ryan is 15 years old. He has autism spectrum disorder. Ryan has been receiving the Gardiner Scholarship through Step Up For Students since the fall of 2015. I would imagine Ryan’s story is a common one if you have a child with autism.
For many years we bounced around the central Florida (Lake Mary and Sanford) area signing up Ryan for just about every sport you could imagine. Basketball, soccer, baseball and swimming. Ryan tried them all, however, he would get easily bored or frustrated, inevitably ending in a full-blown earthquake or meltdown. This led to teasing and taunting by other children. It led to dirty looks from other parents. I would wager that almost every one of you have felt this heart wrenching moment – as you watch your child struggle, falter and fail. My husband, Bill, and I had the eternal hope of finding a “good fit” for Ryan.
After several seasons of tears, anger, anxiety and stress, our family had enough. We finally accepted that sports would not be the right fit for Ryan. The doctors stressed the need for Ryan to be in an activity where he could stay active, work on his social skills and maybe even make a friend. Unfortunately, we didn’t have any luck. Ryan was unhappy and lonely. I have always believed that when one door closes, somewhere God opens a window. That held true for Ryan.
In the fall of 2013, I went on a field trip for one of my older sons and met a mom named Christine Eckstein. I opened up to her and shared Ryan’s story. I told her about Ryan’s educational and medical journey with autism. I relayed our plight in finding a sport for Ryan and our sadness with our lack of success. Imagine my surprise when she shared her story of her sons David and Kenny, who also happen to have autism spectrum disorder. Christine told me about a martial arts program that her daughter, Katarina, created to help families just like ours. It’s called Breaking Barriers Martial Arts. They created a nonprofit program to provide martial arts instruction to students with disabilities to help them grow into independent, self-assured adults. As a family they began their journey to help Kenny and David and turned it miraculously into a way to help strangers in need. I was impressed and in awe of their story. The mom, dad, Katarina, David, Kenny and even little sister Ava all earned their black belts.
Christine insisted I speak with Katarina about the program. Katarina came over the very next day and met Ryan. She believed the Breaking Barriers program would help Ryan and she insisted we give it a try. To be honest, I was nervous and really questioned how it would be possible for Ryan to learn martial arts. How could he focus and have the discipline needed in a sport such as this? I was afraid to hope. I was even more afraid to set up Ryan for another failure. Could Ryan succeed in taekwondo(TKD) with his autism? I didn’t know for certain but desperate times called for desperate measures.
With a glimmer of hope, we took Ryan to D.C. Turnbull’s Martial Arts studio in Sanford, Fla. for his first Breaking Barriers TKD class in January 2014. The students and instructors welcomed Ryan literally with hugs and high fives. We were amazed by the kindness and love we experienced that day by this open and loving group of students. It was incredible to watch these students who happened to have varying disabilities (autism spectrum disorder, Down syndrome, muscular dystrophy, hearing impairments, visual impairments and intellectual disabilities) demonstrate their martial arts abilities. They were not just taking part in the class, they were excelling at the sport. As parents we were in awe. Ryan was invited onto the mats and by the time class was over he was hooked! Ryan began his TKD journey. It has now been two years and Ryan is a deputy black belt and will be testing for his BLACK BELT in November of this year.
What we have witnessed is truly an incredible transformation in Ryan. Guess what happened? It was something we had always hoped for in spite of Ryan’s many setbacks over the years. Ryan became a LEADER. In February, he was awarded the rank of a Teaching Assistant in the special needs program, assisting younger students with disabilities to learn TKD. Breaking Barriers taught Ryan self-control, discipline, self-confidence, perseverance and indomitable spirit. When Ryan puts on his uniform and steps onto the mat the transformation is incredible! He repeats the mantra “Yes I can,” whenever he learns something challenging and new. Ryan has competed and earned gold and silver medals in forms and sparring. His favorite competitive event is board breaking. He is really good at it. Seriously, you should see his spinning hook kick!
And you know what? NONE of this would have been possible without the help of Gardiner Scholarship has assisted us in providing an incredible learning experience for Ryan at Pace Brantley School in Longwood, FL. This has freed up other funds in our budget so Ryan can participate in new experiences such as the life changing TKD program at Breaking Barriers Martial Arts.
Ryan and his Breaking Barriers buddies prove time and again that their ABILITIES far outweigh any disability they may have. They are breaking boards while breaking barriers. These participants show improvement in their physical abilities such as coordination and strength, but MORE importantly, the BB students show MARKED success in their social skills, focus, independence, respect and confidence. The best part is that TKD is a lifelong sport. If a student is able to reach the rank of black belt, they can choose to keep going and earn higher degrees of black belt. This is different than most sports where students tend to drop out as they get older. Instead TKD and the BB program encourages its students to challenge themselves to stick with the program and achieve higher black belt ranks.
Do you want to be impressed?
Take a minute to watch this video. It will show you the incredible abilities of our Breaking Barriers students. Added bonus: You get to see my superstar son, Ryan – he is the student holding up the autism sign. Watch for his incredible spinning hook!
Breaking Barriers is a 501(c)(3) nonprofit organization based in Florida. Its goal is to teach martial arts to children with special needs. Organizers recently held their first fundraiser – the Breaking Barriers Invitational – an AAU Martial Arts tournament. There were special needs competitors from different areas of Florida as well traditional competitors. It was a big success and next year will be even better. All money raised by the Breaking Barriers programs goes to purchase specialty gear, additional instructors, use of the training facility, etc. The program will continue to expand and provide education and opportunities for special needs students as well as assistance to instructors who wish to offer their own special needs programs in other areas.
Susan Sleboda is not only mom to Ryan, she has two other older, sons, and a husband, Bill. By profession, she is a lawyer, but on sabbatical from practicing so she could raise her three boys. When she’s not watching Ryan break boards, she spends time advocating for him and volunteering in their community. The family lives in Lake Mary, Fla.