By ROGER MOONEY
If it were any other spring but this one, Ryan Sleboda would stand in front of the graduates at the Pace Brantley School and, as valedictorian, would deliver his speech.
Ryan would tell the room filled with students and their families, teachers and administrators about living on the autism spectrum and how it shaped his life.
To illustrate his points, Ryan would hold a piece from a puzzle – the autism symbol.
One puzzle piece for his family. One for his friends. One for his teachers. Put them together and you see a picture forming of Ryan Sleboda.
“It’s going to bring people to tears,” Ryan, 19, said.
He hopes the visual has the same impact when viewed remotely. Since this is the age of the coronavirus, Pace Brantley’s 2020 graduation will be held virtually.
Disappointing, for sure, but not enough to damper Ryan’s enthusiasm for his graduation. Nothing really dampers his enthusiasm for anything.
“Ryan simply has a zest for life,” his mother, Susan, said.
That zest began to emerge when Ryan was 13. He joined a taekwondo class and developed self-confidence and a knack for leadership. It exploded two years later when Ryan attended Pace Brantley in Longwood, Florida as a ninth grader with the help of a Gardiner Scholarship managed by Step Up For Students.
The Gardiner Scholarship is for students with certain special needs.
During the 2019-20 school year, 13,035 schoolchildren received a Gardiner Scholarship, including 8,097 who are on the autism spectrum.
Susan and her husband Bill, who live in nearby Sanford, wanted to send Ryan to Pace Brantley for high school. Brantley is a grade 1 through 12 private school that specializes in teaching students who need individualized attention.
Susan said she knew the school would challenge Ryan both academically and socially. With the Gardiner Scholarship covering most of the cost of tuition, Susan said she and Bill could use other funds to pay for Ryan’s medical expenses and social activities, like taekwondo and a dance program.
Those are also pieces to the Ryan Sleboda puzzle. There are more. Many more.
You can add his attempts at playing soccer, baseball, basketball and swimming as a youngster, because Ryan’s inability to take to those sports is what led him to taekwondo.
And it was in taekwondo where Ryan began to find Ryan.
“It was,” Susan said. “Ryan had had many difficulties behaviorally and socially. Ryan had a lot of difficulty regulating his behavior. He didn’t speak until he was 7.
“He had a very difficult time. Kids could be mean, and some kids knew which buttons to push to get Ryan to explode, and he could be very explosive back then.”
Yet Ryan found a calmness in taekwondo, a martial art that emphasizes jumping, spinning and kicking.
Susan and Bill took him to Breaking Barriers Martial Arts in Sanford, which trains children with special needs.
“It was kids with disabilities helping others with disabilities,” Susan said. “Ryan took to it quickly.”
“I got more energy,” he said, “being more active and communicating with others, being around other people, and definitely the ability to be a leader.”
“Lots of confidence,” he said.
Ryan has earned a third-degree black belt and is a certified taekwondo instructor, teaching other special needs children on Saturday mornings.
“It makes me feel like a leader when I get that opportunity,” he said.
Ryan always wanted to be a leader, even when he was struggling to find himself on the baseball field or a basketball court. Society was telling Ryan what he couldn’t do, as it often does to children on the spectrum. His classmates and teammates were mean, as they often are to classmates and teammates who are perceived to be different. But Ryan felt it didn’t have to be that way, and he said he knew someday it wouldn’t.
He had weaknesses, sure. But Ryan also knew he had strengths.
Those strengths began to surface when Susan and Bill enrolled Ryan in Bridges Academy, a private K-12 school for children with autism and other special needs.
In an instant, Ryan was no longer different from his classmates.
“He was one of the students, and that’s what started him on the path to building self-confidence,” Susan said.
Ryan moved to Pace Brantley as a high school freshman. He was challenged, both inside and outside of the classroom. And he embraced those challenges.
“Ryan has grown up so much and truly wants to make a difference for others,” said Pam Tapley, Pace Brantley principal.
Not only will Ryan graduate as the class valedictorian, he is school president, an anchor of the school’s TV channel and a member of the running club.
He also gave a prerecorded speech online for Step Up For Students Class of 2020 Senior Celebration.
Ryan’s term project for the television class he took as a junior was a documentary on the history of Pace Brantley. He received an A for the assignment, and the video was voted the documentary of the year at the school.
The documentary also earned Ryan the University of South Florida’s Arts4AllFlorida program’s Student of the Month for Sept. 2019.
“The end product was wonderful, and he worked so hard on it to make it represent the history of our wonderful school,” Tapley said.
In collaboration with Chance 2 Dance, a program that works with students of all abilities, Ryan starred in a music video shot in the halls of Pace Brantley.
The song is “Waving Through a Window,” from the Broadway musical, “Dear Evan Hansen.”
“On the outside, always looking in
Will I ever be more than I’ve always been?”
The song symbolizes what children with special abilities go through.
Once, that was Ryan’s life.
That puzzle piece has been tossed aside by others, including ones that are yet to come.
Through his vocational rehab program, Ryan scored an internship with the Central Florida Zoo’s conservation education department. He is fascinated with wolves and tigers.
“Very unique animals,” Ryan said.
In the fall, he will begin classes at Beacon College in Leesburg, Florida.
The college serves students with learning disabilities. Ryan will major in anthrozoology. He hopes to someday work at an animal shelter or a zoo.
“I’d like to build a really good facility with a lot of animals,” he said. “I could have a training program of some kind.”
That’s another puzzle piece – his future.
Ryan could stand in front of a packed room or stare into his laptop for a virtual graduation ceremony and his message will be the same.
Yes, he is autistic.
No, it does not define him.
The puzzle pieces, they define him.
His family and friends. His school and teachers. Taekwondo. Dance. TV production. His love of animals. His desire for a career working with animals.
“Pretty much all the other stuff I’ve managed and done throughout my life,” he said.
Together, those pieces help build the picture of Ryan Sleboda. But it is far from complete, because there are still more pieces to come.
“I’m going to the next part of life,” Ryan said. “That will be extra hard, but I like challenges, and I am excited to see what comes next.”
Roger Mooney, marketing communications manager, can be reached at email@example.com.
Editor’s note: This is the first in an occasional series exploring career challenges and successes for those individuals on the autism spectrum.
By Roger Mooney
Six years ago, Joseph Show stood in front of then Florida Gov. Rick Scott and the Florida Legislature and talked about his life on the autism spectrum. He was not nervous.
Quite the opposite, he said.
It was March 2014, a little more than a week before the April 1 start of Autism Awareness Month, and Show was eager to create awareness for some of the state’s most influential people.
“Hey,” he told the lawmakers,” we exist.”
That was a great way for Show to begin.
More than 3.5 million people in the United States are on the autism spectrum, and the advocacy organization Autism Speaks estimates 707,000 to 1.1 million teens will age out of school-related services each year during this decade.
The Gardiner Scholarship, managed by Step Up For Students, enables parents to personalize the education for children with certain special needs from age 3 through the 12th grade or age 22, which ever happens first.
During the 2019-20 school year, 13,035 schoolchildren received a Gardiner Scholarship. Of that total, 8,097 (62%) are on the autism spectrum.
What happens to those students after they age out of a school-based service? That’s what Show wanted to discuss at the Capitol with lawmakers.
Wearing a blue suit he bought the week before at Dillard’s for the occasion, Show explained that people with autism can accomplish many wonderful things. Sure, some may need more time or use methods that are different than those in the neurotypical population, but is that so bad?
Show finished with this plea, one made by far too many adults on the spectrum.
“Please,” he said, “don’t be afraid to hire us.”
Exact figures are hard to pin down, but the estimate of adults with autism who are unemployed nationwide is believed to be between 80% and 85%. Certainly, those numbers are even higher with the COVID-19 outbreak.
Show, 29, a web app developer for a software company in Tallahassee, Florida, finds those numbers difficult to digest even prior to the pandemic. He turned his degree in information technology from Florida State University into a career. He knows of others on the spectrum who experienced similar success.
“I have trouble reconciling that with these unemployment rates,” he said. “There are clearly people like me who did get jobs and are doing fairly well at them, so shouldn’t this rate be going down?”
Under-tapped talent pool
A 2018 in the University of Washington Magazine said studies have found the biggest roadblock to employment among adults with autism who do not have intellectual disabilities is not a lack of ability but a lack of understanding social skills.
Few things derail a job interview quicker than an inability to make eye contact, too much information in answers or an increased anxiety from communicating with strangers in an unfamiliar setting – all traits common among those with autism.
Generally speaking, the traditional interview process is challenging for those on the spectrum.
Then there is the perception that employees with autism are difficult to manage, are prone to angry outbursts and take more sick days than their neurotypical co-workers.
Allison Leatzow, a consultant at the FSU Center for Autism and Related Disabilities (CARD), said the exact opposite is true.
“A lot of them are so into wanting to follow the directions, their work is their social life, that they’re actually more inclined to want to be there and do their best,” she said.
Those adults on the spectrum who are employed are generally found in two areas: the service industry and high-tech companies.
Some possess an extraordinary attention to detail that makes them ideal employees in jobs that require repetitive tasks. For others, their ability to detect patterns and knowledge of computers serves them well at software companies.
SAP, a German software maker, and Microsoft were among the pioneers in the high-tech world in targeting adults on the spectrum. Both created a hiring process to better evaluate autistic talent. The standard interview process was scrapped and replaced with team-building settings, where applicants worked together to accomplish a task. This is a better way to demonstrate an applicant’s talents and thought process.
SAP began this process in 2013. Within five years, it had hired 128 adults on the spectrum to fill roles in graphic design, software testing, data analysis, IT program management, quality assurance, human resources and finance administration.
“We don’t pigeonhole our candidates on the spectrum. We aren’t going to say, ‘Well, you’re only going to be good at certain things,’ because everyone has different interests and unique talents,” Jose Velasco, who oversees the Autism at Works Program at SAP, told CIO.com.
Not a function issue
sits on a busy thoroughfare in Parkland, Florida. Purchased in 2013 by the D’Eri family, it is among the growing number of small business designed to employ a family member who is on the spectrum.
In this case, it is Andrew, 29. His father, John, looked for a business that he and his son, Tom, could run that would not only employ Andrew but other adults with autism. Tom said they wanted a business that was well-structed, detail-oriented and offered entry-level type work. After a year of research, they settled on a car wash.
“We wanted a business that could employ enough people to create a community and hopefully something that could really have an impact on the perception of adults with autism in the workforce,” Tom D’Eri said. “After preliminary research, it was pretty clear that a lot of people with autism have wonderful skills that are perfect for the workforce, but we, as a society, look at autism as a disability that requires sympathy instead of a really valuable diversity, and that perception issue is really why there is (a high) unemployment among adults with autism.”
Today, Rising Tide has two locations and employs 78 adults with autism, which makes up 80% of the workforce.
Tom D’Eri said the Parkland location averaged 3,000 vehicles a month in the year before his family bought the business. It now averages close to 17,000 a month.
The D’Eris also started Rising Tide U, a program to promote the benefits of hiring autistic workers and provide guidance to those who want to start similar businesses to help cut into that high unemployment rate.
“What is so amazing, sad, interesting – whatever word you want to use – is that this is almost completely a perception issue and not a function issue,” Tom D’Eri said.
was 3 when she was diagnosed with autism. Her parents were told she might never be able to hold a job or live on her own. A frightening forecast, for sure, but one her parents never believed.
Society placed obstacles in front of Moss, her parents helped her knock them down.
“When everyone else said no, they were the ones who said yes to at least give me the opportunity to try or keep pushing forward when other people didn’t have that faith,” Moss said.
Moss, 25, is an autism advocate with psychology and criminology degrees from the University of Florida, and a law degree from the University of Miami. She is believed to be the first openly autistic person to pass the Florida bar exam.
Moss has her own apartment. She wrote two books about growing up on the spectrum and has contributed to a number of publications and websites, including the Huffington Post and Teen vogue. She is an artist.
She has not, however, overcome autism.
“That’s something I feel very strongly about, because I haven’t and that’s not something that’s going to exist,” she said. “I’m very proud to be on the spectrum.
“I have overcome the obstacles that society has in my way, the bias, the discrimination. People who don’t believe in you or think that you’re not capable of things, all that I’ve really overcome.”
Moss founded her own company to advocate for neurodiversity in the workplace and consult with companies on the benefits of an inclusive workforce. Her message is adults on the spectrum have strengths and weaknesses just like neurotypical adults. And, like neurotypical adults, those on the spectrum want the same thing: to be treated with respect.
“It’s being treated as a whole person is what we keep fighting for,” Moss said.
While it is encouraging to see companies reach into the autistic population, Moss would like to see more opportunities than those in the retail and STEM fields.
“I like to explain it like a grocery store,” she said. “We all see young adults working as cashiers or the deli counter. You know they probably are people with disabilities, and it makes you feel good. You love it. But are those same companies hiring people like me to work in their general counsel’s office?”
Working through the diagnosis
Mark Fleming believes that if he walked into a gym and applied for a job as a trainer he would not be hired because he is on the spectrum. That is interesting because Fleming has a bachelor’s degree in exercise science and a master’s in human performance from the University of Alabama.
So, Fleming, 31, opened his own gym, , in Tampa that serves clients on the spectrum.
He said some parents first view an autism diagnosis as a death knell for their child’s future. Fleming believes it should be the opposite.
“Once you get a diagnosis, you can understand more about yourself,” he said. “I may not be good at this, but it doesn’t limit me from owning a business or doing whatever I want to do. You might have some limitations, but it should never be, ‘My kid can never do this,’ or, ‘I won’t be able to do this because of this.’ It should be, ‘I’m able to do this because of this. I’m able to do other things, because I know myself more, I know that I might need help and that’s OK.’”
Joseph Show, Tom D’Eri, Haley Moss and Mark Fleming each used some variation of the word “frustrated” when asked about the 80% to 85% unemployment rate among adults on the spectrum.
Each feels that number can and will be lowered with education for the employees, the employers and even neurotypical co-workers.
Stereotypes must be erased.
In some instances, accommodations need to be made for an autistic employee. Yet, D’Eri said, that has a positive ripple effect.
“When we design systems that work for them, they work for everyone,” he said. “So not only do you get access to this wonderful talent pool, they help you build a better organization.”
How low can the unemployment rate go is, ultimately, up to employers.
“It’s good for everybody to have a neurodiverse workforce,” Moss said. “You have innovation. You have people that have different experiences working together. It’s about understanding, accommodating, and being accepted.”
Roger Mooney, marketing communications manager, can be reached at firstname.lastname@example.org.
By JEFF BARLIS
TAMPA, Fla. – Two months after her son was diagnosed with autism, Laurie Guzman felt broken and defeated, exhausted from searching for the right school.
A scholarship made her whole, if only for a short time.
Ezra was a tall, slender 4-year-old when he and his mom took a tour of LiFT Academy, a private school in Seminole that serves children with special needs.
Meeting the school’s executive director, Ezra furrowed his brow and narrowed his deep brown eyes.
“I’m a bad boy,” he stated as a matter of fact, “so I know you won’t let me come here.”
Kim Kuruzovich, equal parts caring mother and wizened educator, was stunned.
“There are no bad children,” she said, her voice raising an octave. “What are you talking about?”
“Oh, no,” Ezra said, “my teacher told me that. I’m a bad boy. That’s why I got kicked out of school.”
Kuruzovich knelt down to meet Ezra’s gaze and put her hands on his shoulders.
“You are not a bad boy,” she said. “You’re a great boy.”
She turned to Laurie and insisted Ezra enroll, if for no other reason than to learn he’s not bad.
Instantly, Laurie felt a great dam of tension burst with relief. She knew LiFT was where Ezra needed to be.
“I cried on the way home,” Laurie said. “It was heartbreaking. That was the first time I had heard him say he was a bad boy. We don’t use that in our house, so I knew where it was coming from.”
Ezra was 2 when his father, Air Force Sgt. Luis Guzman-Castillo, got orders to move to MacDill Air Force Base in Tampa. Two years later, Ezra’s explosive meltdowns had left whole classrooms trembling in his wake. Laurie was told to find a new preschool.
The diagnosis followed, but it didn’t bring clarity or relief. Instead, raw fear galloped through every synapse of Laurie’s mind as she drove home from the doctor’s office in a daze.
“I knew nothing about anything with autism,” she said. “I didn’t know what to do, where to go, nothing.”
She knew that Ezra was bright and verbal at an early age. She and Luis taught him with flash cards when he was 6 months old.
Ezra was so sweet and charming. Laurie could get lost in his eyes in one moment and then watch storm clouds gather in another.
The meltdowns were devastating. Kicking, screaming, crying, and sometimes running.
“They’re about 45 minutes,” Laurie explained, “and I’d be melting down with him by the end.”
She quit her job as a bank branch manager to stay home with Ezra and his little brother, Elijah. Laurie’s sister, who had two sons with autism back in their home state of Alabama was helpful. But there was so much to learn, it was easy to feel overwhelmed and lonely.
LiFT Academy broke the spell.
One of the tenets of the school is that parents are the experts on their children, so engagement is high. Kuruzovich, who has a daughter with autism, has an inviting way of sharing 20-plus years of experience with parents who are just learning how to navigate this world.
She told Laurie about the Gardiner Scholarship, a state program that allows families with children who have special needs to pay for therapy, tuition and other education-related services of their choice.
“The Gardiner Scholarship literally changed our lives,” Laurie said. “It made it so we are actually able to breathe. It gave me hope that my son can get help and learn like every other kid. I didn’t know that was going to be possible.”
Ezra felt more comfortable right away. He made friends. One teacher wondered if he really had autism.
Just wait, Kuruzovich said.
“When we saw it, it was pretty big,” she said of the inevitable first meltdown. “But it’s not a negative.”
That was the biggest relief to Laurie, who used to lose sleep worrying Ezra would get kicked out the next time he knocked over a desk. But at LiFT, the teachers, administrators and his therapists all know how to avoid and defuse meltdowns.
One year later, Ezra is in first grade, studying at a second-grade level. He even represented the school recently when some business people came to visit, telling them: “I love this school because I’m really safe. I can be who I am. People like me here.”
With structures in place at school and a home, everything was going well. Laurie had a plan to go back to work.
Then Luis’ new orders came. They’re moving to Alabama in January.
“Ezra is about to experience the biggest transition of his life,” Laurie said. “And he doesn’t do well with transition anyway. His school is going to change. His friends are going to change. His support is going to change. All of that keeps me up at night.”
Laurie has family in Alabama, but there is no special needs scholarship. The school she found charges $8,000 for tuition – paid up front. It’s a price tag that would make any working-class family swoon.
A proposal in the U.S. House of Representatives to create education spending accounts for some military families would have helped the Guzmans, but the House Rules Committee did not include it for a vote in May.
Rather than panicking, Laurie feels herself rising to the challenge of helping to create a scholarship.
Now, she’s the one with marching orders.
“We were meant to come to Tampa,” she said. “We were meant to get the diagnosis. We were meant to come to LiFT. And I am meant to go to Alabama and make the difference I can make.”
“That’s my mission, to talk to people eye to eye and say what we need, what would help. I’ll say, ‘Look at a mother and a father who got a diagnosis that was completely devastating, thinking our lives were over. And they’re not.’ ”
Jeff Barlis can be reached at email@example.com.
By GEOFF FOX
Ethan Alexander was decompressing in a multi-purpose room at Jacksonville School for Autism.
The lights were out in the room, as the blinking and hum of fluorescent lighting can be bothersome to some students. But the sun was shining through a large glass window, and Ethan, 9, was burning off energy by bouncing on a large blue exercise ball.
Clinical therapist Jasmine Stevens watched Ethan with a warm smile. After a few moments, she had him take deep breaths and whatever anxiety he previously felt seemed to evaporate.
Thanks to the Gardiner Scholarship for students with certain special needs, Ethan and his older brother Ashton, 11, have attended Jacksonville School for Autism (JSA) for two years. Step Up For Students helps manage the scholarship.
Before attending the school, Ethan struggled with reading and math, and didn’t socialize easily.
“His academics have improved greatly and he’s much more engaged with his peers,” Stevens said.
Jill Thomas, the school’s marketing and development director, entered the multi-purpose room as Ethan was counting backwards from five in the voice of his favorite character in “Monsters, Inc.” She asked how he was doing.
“Good!” Ethan said, adding that he hoped to soon see the movie “Black Panther.”
Noticing that Ethan’s earlier anxieties had subsided, Thomas fired a couple questions at him.
“Hey Ethan, what’s five plus five?” she asked.
“Ten!” he said quickly.
“What’s six plus six?”
After a moment, and a couple of bounces, he answered correctly: “Twelve!”
He was clearly pleased with himself.
As Ethan spoke with Thomas, his older brother Ashton was roaming on an elaborate outdoor playground. Keeping to himself, he walked, tightrope-style, along narrow planks that lined the area. The day was warm and a slight breeze blew through his short blond hair.
He was the picture of contentment.
Caitlin Alexander, Ethan and Ashton’s mother, said she worried greatly about her oldest son before they attended JSA. She and husband Van, a regional sales manager for a medical-device company, live in Jacksonville.
“Ashton had horrible behaviors that are now gone,” she said. “He would self-injure himself. His escape from a situation would be to smash his head against something hard. It could have been because of something someone said or something he heard, which made daily life a huge struggle.”
Ethan and Ashton previously attended a different school in the area. When their favorite teacher, Breiyona Baltierra, moved to JSA, she encouraged the Alexanders to visit.
“We fell in love with the school, too,” Caitlin Alexander said.
Tour JSA’s campus and it’s not hard to understand why. The school opened in 2005 and has been in the building formally occupied by an architectural firm since 2013. The school began with only two students, but there are now 60 – who range in age from 2 to 31 – and a waiting list. Ten of the school’s current students are on the Gardiner Scholarship program.
The school is housed in a spacious, two-story building with elaborate skylights in several classrooms.
Still, Thomas said, “There’s no more physical space. We get multiple calls a day from people wanting to get on the waiting list.”
On the first floor are several classrooms and a clinical wing where most students spend half of each day working one-on-one with a therapist.
Students who need individual therapy have their own cubicles where they can work without interruption.
Upstairs is a library that includes a Wii set-up, additional clinical spaces and more classrooms.
Inside a music room, piano teacher Twila Miller, known as “Mrs. Ty,” was teaching student Srinidhi “Sri” Aravind notes on a piano.
“Tap, tap, tap, tap,” Miller said, as Sri, a Step Up scholar, struck the correct keys in the proper rhythm.
“We’re learning how to hold the note,” Miller said. “The piano is a wonderful tool to learn to make your hands do what you want them to do.”
Sri kept playing, deliberately at first, but gaining confidence as she went.
“Isn’t that beautiful?” Miller said. “It sounds like the piano is talking to me.”
An occupational therapy classroom features resources and equipment that help students work on speech, writing and other fine motor skills, such as gripping objects properly.
Gym mats line the floor. There is also a large swing and a “ball pit,” where students can burn energy playing with plastic balls in a safe area.
“A lot of our students struggle with communication, so everything they learn academically is in a social setting,” Thomas said. “It may look like they’re playing games, but they’re learning how to interact and respond appropriately to one another.
“Some of them are constantly fighting their bodies to sit down and be calm.”
The school also has an adult vocational program in which participants help prepare lunches for students, as well as cleaning up and dishwashing.
“We want to teach them anything that can translate into a job,” Thomas said.
A dozen local businesses – including restaurants, grocery stores, thrift shops and a food pantry – routinely hire JSA students for part-time work. Spectrum Shredding even has a shredding machine at JSA, so some students can work without leaving the campus.
School officials hope to eventually open a separate center focused on residential and educational services for adults on the autism spectrum.
“We don’t want them to graduate high school or turn 22 and then have nothing to do,” Thomas said. Students are eligible to receive the Gardiner Scholarship until age 22.
The school needs 20 to 30 acres of land to build what is tentatively called the Autism Center for Residential and Educational Services. The trick is finding land close enough to the existing school – as well as raising money for the project, which would include housing, an auditorium, wings for elementary, middle and high school, a gymnasium and cafeteria.
“We want to offer Applied Behavior Analysis therapy and really expand our vocational programs and employment placement,” Thomas said. “There’s also a residential living component – supportive living. A lot of our students will not be able to live totally independently, but we want them to have all the resources they need to thrive and live in a supportive community.”
It is that attention to students’ overall well-being that attracted the Alexanders and the dozens of other families JSA has served.
Caitlin Alexander marveled at the progress her sons have made there in a relatively short time.
Ethan has been transformed from a student who didn’t like interacting with others into one of the school’s most outgoing students.
And Ashton’s behavioral issues have improved as dramatically as his interest in numbers has grown. He also has become proficient with Microsoft PowerPoint, which he uses to make slide shows, charts and graphs for various projects.
“He’s also really getting into coding,” his mother said. “You never know. He could be the next Steve Jobs.”
Geoff Fox can be reached at firstname.lastname@example.org.
By DAVID TUTHILL
Josh Clay sometimes speaks at such a frantic speed he needs to slow himself down.
But he speaks with authority on so many topics – from theater, to the band Green Day, to the world of comedy – that you would never believe the challenges he’s overcome.
The 15-year-old was born with Asperger’s syndrome. Considered to be at the high-functioning end of the autism spectrum, those with Asperger’s often have difficulty with social interactions, and may exhibit compulsive behaviors and repetitive movements. They also tend to show an intense, all-absorbing interest in topics they enjoy.
In preschool, Josh often hit milestones later than his classmates, and he exhibited behavioral tics associated with Asperger’s.
In elementary school, he was placed on an Individualized Education Plan to help him navigate the special education he needed, which seemed to work. He was on an adequate academic pace and he made good acquaintance with fellow students. Thanks to a strict school policy, bullies were virtually nonexistent.
When it was time to start middle school, other potential issues came into focus. Josh was an “out of zone” Title I student for elementary school, but a lack of room in the preferred middle schools meant Josh would have to attend the school near his address, where he knew no one, and no one knew him.
His parents, Edward and Julie Clay didn’t feel confident their neighborhood school in Naples, Florida, could accommodate him academically.
So, Edward and Julie decided to home-school Josh in sixth and seventh grade.
“Josh was academically fine in elementary school,” Julie Clay said. “He was just a little fidgety. We decided home schooling for middle school was probably for the best as he got older.”
Josh’s sixth- and seventh-grade years were successful. His mother had no plans of putting Josh back in school, but things were about to change.
Knowing his diagnosis meant he would always need extra attention and therapy, Julie Clay took Josh to a behavioral therapist before he started eighth grade this year.
The therapist told her about two things that would change the direction of Josh’s education: the Gardiner Scholarship for families with children with certain medical diagnoses, such as Asperger’s, and De LaSalle Academy, a private school for students with special needs in nearby Fort Myers, Florida.
“When I heard about (De LaSalle) I thought, ‘Wow, this would be really great for him. Let’s walk down this path and see if it’s the right fit,’” Julie Clay said.
On his first visit to De LaSalle, Josh noticed how different the school was from his previous ones.
“I saw they all had classes with kids who reminded me of me,” he said. “I got along well with the teachers, and I liked that the only homework was classwork that we didn’t finish.”
While Josh was eager to attend and blend into the De LaSalle culture, there were some growing pains. He applied for and received the Gardiner Scholarship through Step Up For Students.
His situation was nothing new to De LaSalle Principal Lori Riti. Under her direction, the school’s speech language pathologist, social communication , occupational therapist and counselor all work in tandem for students like Josh.
“Josh came here with some social issues, mainly with getting along and connecting in a way with other kids that was healthy,” Riti said.
Some of the issues Josh mastered at De LaSalle Academy were interpreting nonverbal communication and perception, as well as conflict resolution. The school’s specialists made tremendous strides with him. One of his closest friends at school was once a child with whom he argued and fought with regularly.
“Josh had some onboard skills, but he had to take where he was and develop much further,” Riti said. “He wasn’t successful until he had direct intensive work. I give a lot of credit to our teachers and advisors for his success.”
His achievements aren’t limited to the classroom. Josh has become one of De LaSalle’s star theater performers. He recently starred as Long John Silver in the school’s rendition of “Treasure Island.”
This winter, the school’s Performing Arts Club will perform the Christmas classic, “It’s a Wonderful Life.” De LaSalle’s stage will be designed to look like an old-time radio station, and Josh will play several roles, including the “warped and frustrated” Mr. Potter, Mr. Gower, the druggist, and Ernie, the cab driver.
A natural performer, his penchant for inspiring laughter at school is legendary.
On a recent weekday, he told one of his favorite jokes about ordering steak at a restaurant: “When they asked how I wanted it cooked, I said, ‘On a stove.’”
While Josh’s favorite band is Green Day, he strongly warns against their occasionally profane language. The family saw the band perform live in September. Since the tickets were purchased in January, Josh had to wait nine months.
It was worth it.
The show, he said, “was legendary.”
Josh said he hopes to someday attend Florida Gulf Coast University in Fort Myers, where he wants to continue improving his acting chops and hone his comedic talent.
As for his experiences at De LaSalle, he couldn’t be happier.
“For parents who want to send their kids to this school, well, it’s the greatest school in the universe,” Josh said. “It will be the greatest move you ever do.”
David Tuthill can be reached at email@example.com.
By GEOFF FOX
Wesley Hamilton, a curious, curly-haired six-year-old was blessed with a high IQ.
When he was 3, a preschool teacher asked his class to say words that started with “a.” While many of his classmates answered “apple” or “ant,” Wesley said, “actually.”
He started having some uncommon struggles at a young age, said his mother, Emily Ashworth Hamilton, chief technology officer with ABB Optical Group in Coral Springs.
He didn’t like having his fingernails clipped.
He wouldn’t touch things with his hands, including food.
He stopped making eye contact with other people.
He had trouble sleeping, and when he did sleep, he often had nightmares.
He also would overreact to “the simplest things,” said Ashworth Hamilton, who lives in Miami with Wesley, her 2-year-old daughter Holly and husband Bill Hamilton, a mobile software architect with AT&T.
“He would have kind of the classic 2-year-old temper tantrum, but they never ended,” she said. “Not only in the moment, but they’d just never stop. His language was sort of odd, too, but he was incredibly verbal. His sentences were very deliberate, but the words he used were huge.”
In April 2015, Wesley was diagnosed as being on the “high-functioning” end of the autism spectrum.
Ashworth Hamilton eventually applied for and received a Gardiner Scholarship through Step Up For Students. The state-funded scholarship is for students between 3 and 22 and who have disabilities including: autism spectrum disorder, muscular dystrophy, cerebral palsy, Down syndrome, Spina bifida and other impairments.
The scholarship allows parents to personalize their child’s education by directing money toward schools, therapists, specialists, curriculum and technology, as well as a college savings account.
Last year, Wesley’s family used the scholarship to help pay for Applied Behavior Analysis therapy through Optimum Behavioral Services in Sunrise. Ashworth Hamilton said the therapy is not covered by her insurance.
Much of Wesley’s first year of therapy was not spent in a school or social setting, but “in a clinical environment,” she said.
“It could pertain to playing with others appropriately, or in a classroom, or following the instructions of a parent or adult in charge – how to react appropriately in certain situations,” Ashworth Hamilton said.
“(Children on the autism spectrum) have to be explicitly taught. They can’t simply observe or follow other people’s leads.”
Blanca Onetto, clinical director at Optimum Behavioral Services, where Wesley is a patient, said therapists quickly realized Wesley was very bright, with an enthusiasm for learning and a healthy sense of humor.
She said he enjoys music – particularly Queen’s classic rock hit, “We Will Rock You” – using his iPad, building with blocks, and playing with toy airplanes, cars and construction materials.
However, Onetto said, Wesley had difficulty communicating “across multiple contexts,” such as “social-emotional reciprocity,” non-verbal communication used in social interaction, and developing, maintaining and understanding relationships.
Sometimes, Onetto said, he threw the tantrums his mother described, displayed physical aggression and had anxiety issues.
Peer training, positive reinforcement and “naturalistic-incidental teaching” at the center has helped improve his conversational skills, while therapies to assist with shyness and impatience have included participation in a social skills group that features role playing.
To address tantrums and aggression, the center has used therapies that “decrease Wesley’s inappropriate behaviors by replacing them with appropriate ones,” Onetto said.
“Our goal is to teach Wesley appropriate social interactions, which at the same time would help to develop many other skills, including listening, attention, reading body language and social references,” she said. “He has shown considerable progress on all his treatment goals, but we will continue working on achieving higher standards.”
Onetto’s team of therapists have accompanied Wesley to school, thanks to Gardiner. This has helped Wesley transition into an academic environment and a mainstream classroom successfully with the support he needs.
Ashworth Hamilton said she did not want Wesley to go to his neighborhood elementary school, where, thanks to his high IQ, he would likely have been mainstreamed into a large class with a teacher who may not have experience handling students with special needs.
Through the Gardiner Scholarship, Wesley attends Miami Shores Presbyterian Church School, a kindergarten- through fifth-grade private school with a preschool program. He is now in first grade.
Ashworth Hamilton said she’s now optimistic Wesley will be better able to manage his anxieties, focus on tasks and increase his “functional capabilities.” His successful integration into a mainstream classroom is due to the partnership at school between parents, teachers and therapists and is building a strong foundation for Wesley.
“The goal is to build him up so the support needed will decrease over time,” his mother said. “I think he will continue to need a learning environment that is very much able to have some flexibility with his learning style; he’s very visual and has lots of sensory stimuli to contend with.”
Onetto is also impressed.
Because Wesley is high-functioning, Onetto said she doesn’t see any reason why he won’t be able to someday live independently and lead a fulfilling life.
“Each individual with autism is unique,” she said. “Many of those on the autism spectrum have exceptional abilities in visual skills, music, and academic skills. About 40 percent have average to above-average intellectual abilities. Indeed, many persons on the spectrum take deserved pride in their distinctive abilities and atypical ways of viewing the world. Others with autism have significant disability and are unable to live independently.
“With the appropriate support, (Wesley) will be a productive and successful citizen – maybe another Bill Gates!”
Reach Geoff Fox at Gfox@sufs.org.
By GEOFF FOX
It was just after 10 a.m. and dozens of students at Pace Brantley School were in the middle of campus, kicking soccer balls in a large field, playing on a jungle gym, swinging and jumping rope under a cloudless sky.
Their voices and laughter were carried on a light breeze that shook Spanish moss in dozens of majestic oak trees that line the sprawling, nine-acre campus.
It was eighth-grader Ben Zanca’s favorite time of day.
“I like it because I get to make friends, and you get to do a lot of fun things,” he said.
Ben has asthma, cerebral palsy, autism and CLOVES syndrome, a rare disorder characterized by tissue overgrowth and complex vascular malformations. After struggling in public school and at a charter school, he was thriving in his first year at Pace Brantley.
“His self-confidence has increased tremendously,” said his mother, Ann Zanca. “It’s a lot of hands-on learning. He made a car out of a Coke bottle and started telling me about Newton’s laws of motion. His reading had regressed when he went into middle school, but here his reading, spelling and writing has much improved. And he’s enthusiastic about going to school.”
In 2016-17, Pace Brantley served over 170 second- to 12th grade students. Ben was one of about 35 students on the Gardiner Scholarship for students with certain special needs. The scholarship is managed by Step Up For Students.
The school includes seven buildings, an outdoor basketball court and well-manicured football and baseball fields. The campus had one building, a former house, when the school opened in 1971. Additional buildings have been added as needed, and as money was available. The school has always been geared toward students with learning issues.
“The majority of our students have a difficulty such as auditory processing disorder, dyslexia or ADHD,” said Jennifer Foor, Pace Brantley’s elementary and middle school principal. “Some of them are on the autism spectrum, but on the high-functioning side. The kids on the spectrum are not here because of behavior concerns.”
Pace Brantley currently has three mental health counselors on campus, as well as an occupational therapist, speech pathologist and full-time nurse who specializes in handling students with anxiety issues.
This year, the school even “hired” Ben, a therapy dog who lives with school nurse Tara Mahoney and comes with her to work every day – like a law enforcement K-9 officer. An American breed mix, Ben is quick to lick the hands of strangers. When he is tired, he is not shy about dropping to the floor and stretching with a low yowl.
Ben has been immensely popular since his Jan. 3 debut on campus. Whenever students are feeling especially anxious, they can see Mahoney – and Ben.
“It’s positive redirection and visualization. I speak in a calm voice and there’s low lighting,” Mahoney said. “We typically end up on the floor. They can convey their feelings to Ben or just pet him. Usually, after 10 or 15 minutes they’re ready to go back to class. There’s a more relaxing vibe with him being here. He makes everybody feel more comfortable.”
Pam Tapley, who has been Pace Brantley’s head of school for three years, is always looking to incorporate effective, innovative concepts to benefit her students. She was previously an assistant superintendent of schools in Osceola County and has been a high school principal.
“I’m passionate about providing the environment that allows students with differences to be celebrated and surrounded by people who honor and respect that, but also believe they can be successful,” Tapley said. “We have a wrap-around philosophy. We want to provide the environment for students to be successful, but we do it with the parents, with the occupational therapy, with the speech therapy, the mental health therapy.
“We wrap the whole family into the support. A lot of times the families are frustrated. They’re seeking answers and support and we give that to them here. They don’t feel isolated anymore.”
The environment includes everything from cutting-edge technology in classrooms to practical lessons outdoors.
For example, there is a television production studio, where morning announcements are made under the supervision of instructor Katie Nichols and broadcast through the school. The studio features a green virtual television studio background, Macintosh computers, iMovies for editing, three cameras and a teleprompter.
There is also a greenhouse, where students grow snap peas, tomatoes, lettuce, kale and cabbage under the guidance of science teacher Suzy Grimm. Toward the back of the campus is the Arts Building, where drama classes are held. This year, the school is working on a production of “Aladdin.”
Ninth-grader Ryan Sleboda, a first-year student at Pace Brantley, said he loves the school.
“It’s more challenging than my other schools,” said Ryan, a Gardiner scholar who was diagnosed with autism. “The other schools just did the basics. This really is way more interesting.”
Those on the autism spectrum also benefit from social skills groups in which they learn to better interact with their peers.
“They go over eye contact and body language during personal interaction,” Foor said. “They learn how to react in situations and have conversations.”
The campus’ newest building is the high school, which opened in the 2010-11 school year. Besides classrooms and lockers, the high school features a complete science lab.
“They do dissections in there and everything,” Foor said.
According to Tapley, the school may not be done growing. She hopes to begin a capital campaign to build a vocational center on campus. Tapley is involved with the Greater Sanford Chamber of Commerce and often talks to business leaders in the community to determine what kind of employees they need.
It’s a way of helping her students succeed after graduation.
“What are we providing in a learning situation that gives them the time to learn to be valuable employees?” Tapley said. “We’re gathering the data now. We’re looking at (careers in) plumbing, construction, air-conditioning, culinary and early childhood. We want to look at the employability rates, because you don’t want to flood the market.”
Susan Sleboda, Ryan’s mother, said the school has been a blessing for her entire family.
“He has blossomed because of being at that school,” she said. “What they offer these kids – the environment, in particular – is in my opinion revolutionary. For a child like mine, who can’t typically succeed in a learning environment, it’s like a puzzle fitting together. For Ryan, it provides the perfect environment. The teachers are understanding of your child’s disabilities, as well as their abilities.
“It would be difficult to afford without the scholarship. It would be like paying another college tuition.”
Geoff Fox can be reached at firstname.lastname@example.org.
By GEOFF FOX
Nataleigh Monterio put on her pink riding helmet and light-up cowboy boots.
“I’ve been riding horses my entire life,” said Nataleigh, 9. “Sometimes they answer questions. Miss Patty will ask them yes or no questions and they shake their head yes.”
Nearby, her classmate, Xavier Cebollero, 8, watched with envy. With a cast covering his left forearm after a tumbling accident, he was unable to ride that day.
“Some of the horses are a pain, because they don’t listen to me,” he said. “They speak horse.”
Nataleigh and Xavier, both third-graders, are two of HOPE Ranch’s 125 students. About 60 percent of the students are on the Gardiner Scholarship for students with certain special needs; Natalie and Xavier have diagnoses on the autism spectrum. The scholarship is managed by Step Up For Students.
“Some of these kids have been bullied and abused,” said Jose Suarez, who has run the school since 2005 with Ampy, his wife of 34 years. “They don’t trust people and adults.”
The school’s horsemanship classes are taught by Patty Anderton – known to the students as “Miss Patty.” Anderton used to run a business in Odessa, Florida, where she taught clients the finer points of horse riding. About six years ago, Jose Suarez asked her to help out at the school temporarily. It turned into a full-time job and Anderton hasn’t looked back.
“I love it here,” she said. “It’s much different. My clients before were usually adults and I wanted something different.”
As Anderton spoke, Nataleigh navigated Georgie around a figure eight pattern and had her trot at different speeds.
“The horses help bring them out of their shell,” she said. “A lot of them haven’t had the greatest life in school. They don’t trust a whole lot and the horses help bring that trust out.”
While horse riding is a popular activity, none of the students automatically get to ride every week.
“Horsemanship is a class, but riding is a privilege,” Jose Suarez said. “They have to have their grades and behavior under control. They have to earn it.”
The Suarezes opened the ranch in 2005, originally for troubled children. By then the couple, who have two adult children, had been caring for foster children for two years. Not long after opening the ranch, the mother of an autistic child approached them about expanding the program.
Ampy Suarez couldn’t say no.
“We want to give them opportunities that they never would have had otherwise,” she said.
It seems to be working. A discussion Nataleigh and Xavier had in the horse arena demonstrated genuine enthusiasm among the students.
“I just love this school, in general,” Nataleigh said. “When I was five or six, I went to a completely different school. When I was really young, I was really picky, though. They didn’t have a barn; they didn’t have any animals.”
“In Miss Patty’s class, we get to go on field trips. We went to We Rock the Spectrum in Pinellas County,” Xavier said, referring to the Clearwater gym with equipment designed to help children with sensory processing disorders. “We also went to The Brick University (an art school for children). We got to make a plane and a cupcake out of LEGOs.”
Xavier wasn’t done talking, but Natalie’s excitement prevented her from staying quiet.
“One week every year, we have Spirit Week,” she said.
Xavier started to speak again.
“Xavier, calm yourself,” she said. “Then, on a specific day, we have Character Day.”
“That’s when we get to dress up like any character,” he said.
“Yes, thank you, Xavier,” she said. “I went as a HOPE Ranch Learning Academy fairy. I had a little skirt and fairy wings, and it was really cute.”
“I was a mixture of super heroes,” he said. “I had a Captain America mask and a Superman cape.”
“He was Super Ultra Xavier!” she said.
As the school continues to grow, Jose Suarez said it will expand. He expects 200 students next year.
“We’ll need to beef up our infrastructure and maybe open another campus,” he said.
Suarez attributed the school’s growth to word-of-mouth advertising among parents of children with special needs, as well as a Google arrangement that drives Internet browsers to HOPE Ranch’s website.
“I’m starting to get requests from across the nation,” he said. “I recently got a call from Wisconsin. They said, ‘If that’s the right school, we’ll move.’”
Reach Geoff Fox at email@example.com.
By SUSAN SLEBODA, GUEST BLOGGER
My son, Ryan is 15 years old. He has autism spectrum disorder. Ryan has been receiving the Gardiner Scholarship through Step Up For Students since the fall of 2015. I would imagine Ryan’s story is a common one if you have a child with autism.
For many years we bounced around the central Florida (Lake Mary and Sanford) area signing up Ryan for just about every sport you could imagine. Basketball, soccer, baseball and swimming. Ryan tried them all, however, he would get easily bored or frustrated, inevitably ending in a full-blown earthquake or meltdown. This led to teasing and taunting by other children. It led to dirty looks from other parents. I would wager that almost every one of you have felt this heart wrenching moment – as you watch your child struggle, falter and fail. My husband, Bill, and I had the eternal hope of finding a “good fit” for Ryan.
After several seasons of tears, anger, anxiety and stress, our family had enough. We finally accepted that sports would not be the right fit for Ryan. The doctors stressed the need for Ryan to be in an activity where he could stay active, work on his social skills and maybe even make a friend. Unfortunately, we didn’t have any luck. Ryan was unhappy and lonely. I have always believed that when one door closes, somewhere God opens a window. That held true for Ryan.
In the fall of 2013, I went on a field trip for one of my older sons and met a mom named Christine Eckstein. I opened up to her and shared Ryan’s story. I told her about Ryan’s educational and medical journey with autism. I relayed our plight in finding a sport for Ryan and our sadness with our lack of success. Imagine my surprise when she shared her story of her sons David and Kenny, who also happen to have autism spectrum disorder. Christine told me about a martial arts program that her daughter, Katarina, created to help families just like ours. It’s called Breaking Barriers Martial Arts. They created a nonprofit program to provide martial arts instruction to students with disabilities to help them grow into independent, self-assured adults. As a family they began their journey to help Kenny and David and turned it miraculously into a way to help strangers in need. I was impressed and in awe of their story. The mom, dad, Katarina, David, Kenny and even little sister Ava all earned their black belts.
Christine insisted I speak with Katarina about the program. Katarina came over the very next day and met Ryan. She believed the Breaking Barriers program would help Ryan and she insisted we give it a try. To be honest, I was nervous and really questioned how it would be possible for Ryan to learn martial arts. How could he focus and have the discipline needed in a sport such as this? I was afraid to hope. I was even more afraid to set up Ryan for another failure. Could Ryan succeed in taekwondo(TKD) with his autism? I didn’t know for certain but desperate times called for desperate measures.
With a glimmer of hope, we took Ryan to D.C. Turnbull’s Martial Arts studio in Sanford, Fla. for his first Breaking Barriers TKD class in January 2014. The students and instructors welcomed Ryan literally with hugs and high fives. We were amazed by the kindness and love we experienced that day by this open and loving group of students. It was incredible to watch these students who happened to have varying disabilities (autism spectrum disorder, Down syndrome, muscular dystrophy, hearing impairments, visual impairments and intellectual disabilities) demonstrate their martial arts abilities. They were not just taking part in the class, they were excelling at the sport. As parents we were in awe. Ryan was invited onto the mats and by the time class was over he was hooked! Ryan began his TKD journey. It has now been two years and Ryan is a deputy black belt and will be testing for his BLACK BELT in November of this year.
What we have witnessed is truly an incredible transformation in Ryan. Guess what happened? It was something we had always hoped for in spite of Ryan’s many setbacks over the years. Ryan became a LEADER. In February, he was awarded the rank of a Teaching Assistant in the special needs program, assisting younger students with disabilities to learn TKD. Breaking Barriers taught Ryan self-control, discipline, self-confidence, perseverance and indomitable spirit. When Ryan puts on his uniform and steps onto the mat the transformation is incredible! He repeats the mantra “Yes I can,” whenever he learns something challenging and new. Ryan has competed and earned gold and silver medals in forms and sparring. His favorite competitive event is board breaking. He is really good at it. Seriously, you should see his spinning hook kick!
And you know what? NONE of this would have been possible without the help of Gardiner Scholarship has assisted us in providing an incredible learning experience for Ryan at Pace Brantley School in Longwood, FL. This has freed up other funds in our budget so Ryan can participate in new experiences such as the life changing TKD program at Breaking Barriers Martial Arts.
Ryan and his Breaking Barriers buddies prove time and again that their ABILITIES far outweigh any disability they may have. They are breaking boards while breaking barriers. These participants show improvement in their physical abilities such as coordination and strength, but MORE importantly, the BB students show MARKED success in their social skills, focus, independence, respect and confidence. The best part is that TKD is a lifelong sport. If a student is able to reach the rank of black belt, they can choose to keep going and earn higher degrees of black belt. This is different than most sports where students tend to drop out as they get older. Instead TKD and the BB program encourages its students to challenge themselves to stick with the program and achieve higher black belt ranks.
Do you want to be impressed?
Take a minute to watch this video. It will show you the incredible abilities of our Breaking Barriers students. Added bonus: You get to see my superstar son, Ryan – he is the student holding up the autism sign. Watch for his incredible spinning hook!
Breaking Barriers is a 501(c)(3) nonprofit organization based in Florida. Its goal is to teach martial arts to children with special needs. Organizers recently held their first fundraiser – the Breaking Barriers Invitational – an AAU Martial Arts tournament. There were special needs competitors from different areas of Florida as well traditional competitors. It was a big success and next year will be even better. All money raised by the Breaking Barriers programs goes to purchase specialty gear, additional instructors, use of the training facility, etc. The program will continue to expand and provide education and opportunities for special needs students as well as assistance to instructors who wish to offer their own special needs programs in other areas.
Susan Sleboda is not only mom to Ryan, she has two other older, sons, and a husband, Bill. By profession, she is a lawyer, but on sabbatical from practicing so she could raise her three boys. When she’s not watching Ryan break boards, she spends time advocating for him and volunteering in their community. The family lives in Lake Mary, Fla.