From jumping rope to riding bikes, education savings accounts help those with autism expand their world
BY ROGER MOONEY
SARASOTA – Sophia Slaughter, who is 15, recently learned to jump rope.
Maybe that is not a big deal to someone who was skipping Double Dutch at 5, but it is to Sophia, who is on the autism spectrum and has dyspraxia. Known as developmental co-ordination disorder, dyspraxia hinders her coordination. Some activities that neurotypical teenagers consider routine are nearly impossible for her.
While working with trainer Dani Williams at NXT Generation Wellness in Sarasota for the past two years, Sophia gradually gained command of her muscles and their movements. She can hold a yoga pose and coordinate her footwork to move through a series of squares taped on the floor at NXT Generation.
And she can complete in proper order the mini skills that allow her to jump rope.
“It’s life-changing,” said Sophia’s mom, Jennifer Slaughter.
Sophia, who lives in Sarasota and is home schooled, receives the Family Empowerment Scholarship for students with unique abilities (formerly the Gardiner Scholarship). It is managed by Step Up For Students. Sophia uses her education savings account that comes with the scholarship to pay for the sessions at NXT Generation, as well as for yoga classes and ballroom dancing.
These activities added health and fitness to Sophia’s life, helped her become more socially interactive, and gain a circle of friends.
“That’s the ultimate goal,” Williams said. “Elevate and enhance their current life, or what they view as their current life, and open doors and continue on this path.”
In early August, 20-year-old Riley Joyce for the first time in his life rode a two-wheel bicycle without any assistance. His mom, Judi, who watched from the driveway of their Sarasota-home cried.
“It was the best thing ever to see,” Judi said.
Like Sophia, Riley is on the autism spectrum. He lives in Sarasota and is home schooled. Riley also receives the Family Empowerment Scholarship (formerly Gardiner) and uses his education savings account for yoga, ballroom dancing and sessions with Williams.
Riley was introduced to Williams three years ago during her Saturday group classes, which are sponsored by Face Autism. For the past two years, Riley has taken weekly one-on-one classes with Williams.
Started by Colleen Buccieri, whose godson Jordan Soriano is on the spectrum, Face Autism is a nonprofit that organizes autism-appropriate activities such as bowling, horseback riding, and golf. It also sponsors a ballroom dancing class at Dynasty Dance Club in Sarasota.
Judi enrolled Riley in the fitness class, hoping he would get healthier and make friends. Check and check.
Riley has lost 33 pounds since he began working with Williams. At first, he could barely manage five minutes on the treadmill. Now he can walk and run for 30 minutes, increasing the pace as he goes along.
“His endurance has gone off the charts,” Judi said.
As for socializing, Riley chats with everyone he encounters, making friends wherever he goes.
“He doesn’t stop talking, which is great,” Judi said. “I love it.”
In July, Riley spent a week in the Adirondack Mountains of New York with a small group of friends who are on the spectrum. They hiked, went fly fishing, ziplining, and kayaking.
The outing was the idea of Williams’ boyfriend, Chase Pettey, who runs Adventure For All, a nonprofit that creates interactive adventures for those with intellectual and/or developmental exceptionalities.
Riley tried to ride a two-wheel bike during the trip and came close. He finally conquered that feat not long after returning home.
Williams helped Riley master the bicycle (which Riley purchased with his education saving account) with a series of exercises over a six-month period that improved his balance and stability.
“The confidence in Riley has just skyrocketed,” Williams said. “He’s much more willing to try new things, so that’s been a wonderful thing to witness.”
As Jordan’s godmother, Colleen was keenly aware of how children on the spectrum grow up without friends. They aren’t invited to birthday parties or asked to go to the movies. She created Face Autism in 2009 to change that.
“I just look for different opportunities for kids to be involved in, things that typical kids would be involved in,” she said. “And I’m a big proponent of getting them off the video games and the computers. A lot of the kids don’t have fitness in their life. I think it’s very important – have a healthy heart, a strong body. Most of them don’t have upper body strength.”
Jordan, 21, lacked upper body strength when he began training with Williams four years ago. He couldn’t jump rope. He could ride a two-wheel bike, but he couldn’t peddle with much power.
A recipient of the Family Empowerment (formerly Gardiner) Scholarship, Jordan, who is homeschooled, used his education savings account to pay for his training sessions with Williams.
Jordan can jump rope. He can vertically jump 36 inches. He has learned to stand when he rides his bike so he can generate more power when he peddles. He runs 35 minutes around his home in Ellenton, Florida every other day. He is making plans to bring his bicycle to Riley’s house, so they can ride their bikes together.
Jordan, who excels at ballroom dancing, was part of the group that made the trip to the Adirondacks.
“This has given him confidence to try new things and to challenge himself,” Colleen said.
And to keep trying. During the Adirondack trip, Jordan tried to complete an obstacle course on his bike. He was unsuccessful the first time, and he was unsuccessful the second time. He didn’t quit, though, and eventually he completed the course.
“He has really shown determination,” Colleen said, “something he never had.”
That’s all part of the plan Williams has for each of her clients. Knowing no two have the same challenges, she devises individual programs for each. “Outside the box” training, she called it. Williams developed a book where they can chart their progress during workouts and encourages them to write in a journal. She teaches them about proper nutrition and the importance of staying hydrated.
Williams, who graduated from Saint Francis University (Loretto, Pennsylvania) in 2011 with a dual degree in Elementary and Special Education, works as a learning support teacher at Community Day School in Sarasota.
In 2012, Williams began Kids in Motion, which morphed into the wellness program that is now NXT Generation.
“Watching the underdogs take on things we’ve preconceived them unable to do or limited what they could actually do and see them be able to do it with the correct support and guidance is one of my greatest joys in life, hands down,” Williams said.
Her goal is to push clients with special needs through the glass ceiling society has placed above them, to show the impossible is possible.
Like jumping rope for Sophia Slaughter.
Roger Mooney, manager, communications, can be reached at firstname.lastname@example.org.