Brave warrior, inspiring model flourishes with scholarship

By DAVID HUDSON TUTHILL

Her name means “Brave Warrior” in Spanish.

That might not conjure up the image of a 6-year-old girl with blonde hair, glasses and a smile so bright she became the first person with Down syndrome to become a main model for a major fashion brand.

Born with Down syndrome, Valentina Guerrero, started modeling at 9 months old.

But, Valentina Guerrero always defies expectations.

The oldest child of Cecilia Elizalde and Juan Fernando Guerrero, Valentina was born Sept. 16, 2011. Her parents didn’t learn Valentina had Down syndrome until after her birth.  Each year, roughly 6,000 children in the U.S. are born with the genetic condition according to the Centers for Disease Control.

A Gardiner Scholarship for children with certain special needs has helped Valentina shatter incorrect assumptions many people make about people with Down syndrome. Step Up For Students helps manage the scholarship.

“I realized how incredible individuals with Down syndrome are,” Elizalde said. “They’re so evolved on a spiritual level, and we have so much to learn from them. But we don’t hear enough of that. We hear outdated comments about their potential. I wanted to help change that perception.”

The family, including younger brother Oliver, 3, lives in Miami. Other family members remain in their native Ecuador.

Valentina was a few months old when her parents realized some of the challenges she could face. They soon had her working with occupational, physical and speech therapists.

Adriana Tilley, an occupational therapist with 33 years of experience, has been working with Valentina since she was a baby.  Tilley says Elizalde and Guerrero are deeply involved with their daughter’s care, which has had a huge influence on her development. The Gardiner Scholarship helps pay for the care.

“The parents have been incredible and a huge member of the team,” Tilley says. “Valentina is like any other kid, with some limitations. But, we all have limitations.”

Tilley’s six years of work with Valentina have helped the child make tremendous strides in her personality. She constantly is asking how other people are feeling. Tilley marvels at the young woman she’s helped nurture over the past six years.

“She’s met all her milestones and is doing great,” Tilley says. “Now she is learning how to do everything by herself. I’ve loved working with her and learning from her family.”

Even as a baby, Valentina began shattering stereotypes.

She was 9 months old when she began taking the modeling world by storm. Family connections led her to European fashion designer Dolores Cortés. By 2013, she was the main model for the company’s children collection DC Kids USA 2013.  In the ensuing years, Valentina has been featured in a plethora of media outlets, including People Magazine, Down Syndrome World and MTV Tres. She also has modeled for brands such as Walmart, GAP, Toys R Us and Carter’s, the children’s clothing company.

A Gardiner Scholarship for children with certain special needs has helped Valentina Guerreno shatter incorrect assumptions many people make about people with Down syndrome.

Her accomplishments resonated as far away as her family’s native Ecuador – to the extent that the country’s former vice president, Lenin Moreno, wrote Valentina a letter, calling her an inspiration. Moreno is now Ecuador’s President.

“We didn’t take the fame too seriously,” says Elizalde, a former television producer, consultant and music show host on the Spanish-language PBS station V-me. “I saw it as a platform for us to communicate an important message. It was a little hectic having to go from therapies to having cameras all over. It was kind of surreal.”

Social media has played a major role in Valentina’s fame. Thanks to her mother, there are countless photos and videos across Facebook, Instagram, Twitter and YouTube, documenting her life and various activities.

Elizalde also recently began a Spanish language parenting channel on YouTube. She hopes to pass on to other families some of the techniques and therapies that have most helped her family.

She is a firm believer in the adage that it takes a village to raise a child such as Valentina, which is why the family feels so fortunate to be able to choose the right educational path for her.

Valentina enrolled in a three-year pre-K class at Morningside K-8 Academy in Miami. By her third year, she was in class with over 20 kids, one teacher, and an aid. Despite the class size, and with Valentina the only child in class with Down syndrome, the school was largely successful in meeting her needs. When Kindergarten rolled around however, the family toured different school options.

Elizalde was worried about finding the right setting to meet Valentina’s needs. A friend recommended the family check out Von Wedel Montessori School in Miami. As soon as the family walked in, they knew they had found the perfect place for Valentina and her brother, Oliver.

At Von Wedel, the family creates an Individualized Education Plan, or IEP, in conjunction with the principal, teachers and with input from Tilley. Valentina thrives in that setting, and Elizalde loves the philosophy of Montessori – to allow children to develop at their own unique pace, to work independently, and embrace the joy of self-discovery.

“None of her peers notice her disability,” Elizalde says. “They acknowledge that we are all different. It’s a really beautiful environment for her.”

A typical week for Valentina is full of activities. On Monday, there’s swimming lessons after school lets out at 3 p.m. She has occupational and speech therapies on Tuesday. On Wednesday, it’s ballet class. By Thursday, she’s back in the pool. Friday is usually a day to relax and spend time with some of her friends or fit in a modeling gig. Valentina loves going to the playground and to different museums. There is also a standing weekly Friday night dinner with family.

Valentina says she wants to be a chef when she grows up. She likes to play with her kitchen set. Her mother sees a different path, however.  She thinks Valentina is a natural teacher.

Nearly every day at home, Valentina lines up her stuffed animals and reads to them and leads them in a class. The process goes on for a couple hours. Her younger brother Oliver is the only non-stuffed attendee, and she has helped him learn to speak English.

Six years old and with a life so fast paced, it’s hard to imagine the higher levels Valentina Guerrero will reach. With the help of her school, the boundless energy of her mother, and their family’s mission to spread positivity about individuals with Down syndrome, her capacity is endless.

“She’s a warrior,” Elizalde says. “When she has a goal, she fights for it and achieves it.”

Visit Cecilia Elizalde’s YouTube Channel.

David Hudson Tuthill can be reached at dhudson@sufs.org.

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